FORGOTTEN PERSON IN THE HUNTINGTON DISEASE FAMILY

被引：52

作者：

KESSLER, S ^{[1
]}

机构：

[1] UNIV CALIF SAN FRANCISCO,DEPT PEDIAT,SAN FRANCISCO,CA 94143

来源：

AMERICAN JOURNAL OF MEDICAL GENETICS | 1993年 / 48卷 / 03期

关键词：

PSYCHOSOCIAL ISSUES; COPING; FAMILY SYSTEMS;

D O I：

10.1002/ajmg.1320480306

中图分类号：

Q3 [遗传学];

学科分类号：

071007 ; 090102 ;

摘要：

Although spouses play a major role in managing the care of persons affected with Huntington disease (HD), often at the price of subordinating their own aspirations and needs, little or no professional attention has been given to them in the HD literature. Such factors as secrets kept from the spouse, the early age-of-onset of symptoms, gender, and the coping strategies employed by spouses of affected persons are discussed and illustrated. Also, the impact of predictive testing for HD on spouses of persons undergoing testing is briefly touched on. (C) 1993 Wiley-Liss, Inc.

引用

页码：145 / 150

页数：6

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