Harm, hype and evidence: ELSI research and policy guidance

被引：30

作者：

Caulfield, Timothy ^{[1
]}

Chandrasekharan, Subhashini ^{[2
]}

Joly, Yann ^{[3
]}

Cook-Deegan, Robert ^{[2
]}

机构：

[1] Univ Alberta, Hlth Law & Sci Policy Grp, Edmonton, AB T6G 2H5, Canada

[2] Duke Univ, Inst Genome Sci & Policy, Durham, NC 27708 USA

[3] McGill Univ, Dept Human Genet, Montreal, PQ H3A 0G1, Canada

来源：

GENOME MEDICINE | 2013年 / 5卷

关键词：

GENETIC DISCRIMINATION; PATENTS; PERCEPTION; INSURANCE;

D O I：

10.1186/gm425

中图分类号：

Q3 [遗传学];

学科分类号：

071007 ; 090102 ;

摘要：

There has been much investment in research on the ethical, legal and social issues (ELSI) associated with genetic and genomic research. This research should inform the development of the relevant policy. So far, much of the relevant policy - such as in the areas of patents, genetic testing and genetic discrimination - seems to be informed more by speculation of harm and anecdote than by available evidence. Although a quest for evidence cannot always be allowed to delay policy choice, it seems axiomatic to us that policy options are improved by the incorporation of evidence.

引用

页数：6

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