A Study on Caregiver Burden: Stressors, Challenges, and Possible Solutions

被引:51
作者
Bialon, Laura Nelson [1 ]
Coke, Sallie [1 ]
机构
[1] Georgia Coll & State Univ, Milledgeville, GA USA
关键词
hospice; family caregiver; caregiver burden; end of life; palliative; care; terminal illness; home care; ALZHEIMERS-DISEASE; CANCER; CARE;
D O I
10.1177/1049909111416494
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Purpose: The purpose of this qualitative study was to explore factors impacting caregiver burden and to explore possible solutions for family caregivers of terminally ill patients. Results: The majority of caregivers reported experiencing role conflict and inadequate stress management. Caregivers who worked outside the home, those who cared for two parents concurrently, those with the least amount of outside assistance, and caregivers who spent a longer period of time caregiving reported the highest levels of health problems and overall burden. Caregivers stated a need for more support from Hospice agencies, more education on caregiver training, and more public education about Hospice services. Faith played a positive role in alleviating caregiver burden. Conclusion: Early identification, intervention, education and coordination of services may help to alleviate caregiver burden, which will improve quality of life for both patient and caregiver.
引用
收藏
页码:210 / 218
页数:9
相关论文
共 18 条
  • [1] Andrews S C, 2001, Oncol Nurs Forum, V28, P1469
  • [2] Hospice care: What services do patients and their families receive?
    Carlson, Melissa D. A.
    Morrison, R. Sean
    Holford, Theodore R.
    Bradley, Elizabeth H.
    [J]. HEALTH SERVICES RESEARCH, 2007, 42 (04) : 1672 - 1690
  • [3] Predictors of caregiver burden in partners of patients with Parkinson's disease
    D'Amelio, Marco
    Terruso, Valeria
    Palmeri, Barbara
    Di Benedetto, Norma
    Famoso, Giorgia
    Cottone, Paolo
    Aridon, Paolo
    Ragonese, Paolo
    Savettieri, Giovanni
    [J]. NEUROLOGICAL SCIENCES, 2009, 30 (02) : 171 - 174
  • [4] Deal B, 2010, QUAL REP, V15, P852
  • [5] Burden and depression among caregivers of patients with cancer at the end of life
    Given, B
    Wyatt, G
    Given, C
    Sherwood, P
    Gift, A
    DeVoss, D
    Rahbar, M
    [J]. ONCOLOGY NURSING FORUM, 2004, 31 (06) : 1105 - 1115
  • [6] Given B.A., 2001, Nursing care of older adults: Diagnosis, outcomes, interventions, P679
  • [7] Haley William E, 2003, J Palliat Med, V6, P215
  • [8] Stressors, social support, depressive symptoms and general health status of Taiwanese caregivers of persons with stroke or Alzheimer's disease
    Huang, Chiung-Yu
    Sousa, Valmi D.
    Perng, Shao-Jen
    Hwang, Mei-Yi
    Tsai, Chun-Ching
    Huang, Mei-Huang
    Yao, Shu-Ying
    [J]. JOURNAL OF CLINICAL NURSING, 2009, 18 (04) : 502 - 511
  • [9] Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care
    Hudson, P.
    Quinn, K.
    Kristianson, L.
    Thomas, T.
    Braithwaite, M.
    Fisher, J.
    Cockayne, M.
    [J]. PALLIATIVE MEDICINE, 2008, 22 (03) : 270 - 280
  • [10] Koenig H.G., 2002, SPIRITUALITY PATIENT