'The story of my illness': personal accounts of illness on the Internet

被引:49
作者
Hardey, M [1 ]
机构
[1] Univ Southampton, Sch Nursing & Midwifery, Southampton, Hants, England
来源
HEALTH | 2002年 / 6卷 / 01期
关键词
advice; expertise; health; Internet; narrative;
D O I
10.1177/1363459302006001443
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Narratives about health have an established place in the study of the nature of illness and lay encounters with medical expertise. This article is based on research in the electronic realm of the Internet. Within this new and unique space, people have constructed 'home pages' that contain accounts of their health and illness. The interactive and dynamic nature of the Internet means that these web pages represent far more than conventional illness narratives. Based on an analysis of home pages a four-fold typology is presented. This framework is used to map the transformation of people from consumers of health information and care to producers of information and care. It is suggested that home pages constitute the emergence of a new genre that forms part of a broader reconfiguration of the relationship between lay and medical expertise.
引用
收藏
页码:31 / 46
页数:16
相关论文
共 27 条
[1]  
[Anonymous], DOING INTERNET RES
[2]  
[Anonymous], 1998, Personal Home Pages and the Construction of Identities on the Web
[3]   DEVELOPMENT, ACCEPTANCE, AND USE PATTERNS OF A COMPUTER-BASED EDUCATION AND SOCIAL SUPPORT SYSTEM FOR PEOPLE LIVING WITH AIDS HIV-INFECTION [J].
BOBERG, EW ;
GUSTAFSON, DH ;
HAWKINS, RP ;
CHAN, CL ;
BRICKER, E ;
PINGREE, S ;
BERHE, H .
COMPUTERS IN HUMAN BEHAVIOR, 1995, 11 (02) :289-311
[4]  
Burrows R., 2000, Information Communication & Society, V3, P95, DOI 10.1080/136911800359446
[5]   THE SOCIOLOGY OF CHRONIC ILLNESS - A REVIEW OF RESEARCH AND PROSPECTS [J].
BURY, M .
SOCIOLOGY OF HEALTH & ILLNESS, 1991, 13 (04) :451-468
[6]  
Bury M, 1982, Sociol Health Illn, V4, P167, DOI 10.1111/1467-9566.ep11339939
[7]  
BUTEN J, 1996, PERSONAL HOME PAGE
[8]  
Cant S., 1999, NEW MED PLURALISM
[9]  
DECEMBER J, 1996, J COMMUN, V4, P324
[10]  
Frank ArthurW., 1995, WOUNDED STORYTELLER