Evidence-based care in Duchenne muscular dystrophy

被引:14
作者
McDonald, Craig M. [1 ]
Mercuri, Eugenio [2 ,3 ]
机构
[1] Univ Calif Davis, Med Ctr, Dept Phys Med & Rehabil, Sacramento, CA 95817 USA
[2] Catholic Univ, Policlin Gemelli, Pediat Neurol Unit, Rome, Italy
[3] Catholic Univ, Policlin Gemelli, Nemo Ctr, Rome, Italy
关键词
MANAGEMENT; DIAGNOSIS; LIFE;
D O I
10.1016/S1474-4422(18)30115-7
中图分类号
R74 [神经病学与精神病学];
学科分类号
100204 [神经病学];
摘要
引用
收藏
页码:389 / 391
页数:4
相关论文
共 9 条
[1]
Diagnosis and management of Duchenne muscular dystrophy, part 2: respiratory, cardiac, bone health, and orthopaedic management [J].
Birnkrant, David J. ;
Bushby, Katharine ;
Bann, Carla M. ;
Alman, Benjamin A. ;
Apkon, Susan D. ;
Blackwell, Angela ;
Case, Laura E. ;
Cripe, Linda ;
Hadjiyannakis, Stasia ;
Olson, Aaron K. ;
Sheehan, Daniel W. ;
Bolen, Julie ;
Weber, David R. ;
Ward, Leanne M. .
LANCET NEUROLOGY, 2018, 17 (04) :347-361
[2]
Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan [J].
Birnkrant, David J. ;
Bushby, Katharine ;
Bann, Carla M. ;
Apkon, Susan D. ;
Blackwell, Angela ;
Colvin, Mary K. ;
Cripe, Linda ;
Herron, Adrienne R. ;
Kennedy, Annie ;
Kinnett, Kathi ;
Naprawa, James ;
Noritz, Garey ;
Poysky, James ;
Street, Natalie ;
Trout, Christina J. ;
Weber, David R. ;
Ward, Leanne A. .
LANCET NEUROLOGY, 2018, 17 (05) :445-455
[3]
Birnkrant DJ, 2018, LANCET NEUROL, V17, P251, DOI 10.1016/S1474-4422(18)30024-3
[4]
Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care [J].
Bushby, Katharine ;
Finkel, Richard ;
Birnkrant, David J. ;
Case, Laura E. ;
Clemens, Paula R. ;
Cripe, Linda ;
Kaul, Ajay ;
Kinnett, Kathi ;
McDonald, Craig ;
Pandya, Shree ;
Poysky, James ;
Shapiro, Frederic ;
Tomezsko, Jean ;
Constantin, Carolyn .
LANCET NEUROLOGY, 2010, 9 (02) :177-189
[5]
Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management [J].
Bushby, Katharine ;
Finkel, Richard ;
Birnkrant, David J. ;
Case, Laura E. ;
Clemens, Paula R. ;
Cripe, Linda ;
Kaul, Ajay ;
Kinnett, Kathi ;
McDonald, Craig ;
Pandya, Shree ;
Poysky, James ;
Shapiro, Frederic ;
Tomezsko, Jean ;
Constantin, Carolyn .
LANCET NEUROLOGY, 2010, 9 (01) :77-93
[6]
Long-term effects of glucocorticoids on function, quality of life, and survival in patients with Duchenne muscular dystrophy: a prospective cohort study [J].
McDonald, Craig M. ;
Henricson, Erik K. ;
Abresch, Richard T. ;
Duong, Tina ;
Joyce, Nanette C. ;
Hu, Fengming ;
Clemens, Paula R. ;
Hoffman, Eric P. ;
Cnaan, Avital ;
Gordish-Dressman, Heather .
LANCET, 2018, 391 (10119) :451-461
[7]
Newborn bloodspot screening for Duchenne Muscular Dystrophy: 21 years experience in Wales (UK) [J].
Moat, Stuart J. ;
Bradley, Donald M. ;
Salmon, Rachel ;
Clarke, Angus ;
Hartley, Louise .
EUROPEAN JOURNAL OF HUMAN GENETICS, 2013, 21 (10) :1049-1053
[8]
Romitti P., 2009, Morbidity and Mortality Weekly Report, V58, P1119
[9]
Prevalence of Duchenne and Becker Muscular Dystrophies in the United States [J].
Romitti, Paul A. ;
Zhu, Yong ;
Puzhankara, Soman ;
James, Katherine A. ;
Nabukera, Sarah K. ;
Zamba, Gideon K. D. ;
Ciafaloni, Emma ;
Cunniff, Christopher ;
Druschel, Charlotte M. ;
Mathews, Katherine D. ;
Matthews, Dennis J. ;
Meaney, John ;
Andrews, Jennifer G. ;
Conway, Kristin M. Caspers ;
Fox, Deborah J. ;
Street, Natalie ;
Adams, Melissa M. ;
Bolen, Julie .
PEDIATRICS, 2015, 135 (03) :513-521