Biobanks, consent and claims of consensus

被引：77

作者：

Master, Zubin ^{[1
]}

Nelson, Erin ^{[1
]}

Murdoch, Blake ^{[1
]}

Caulfield, Timothy ^{[1
]}

机构：

[1] Univ Alberta, Hlth Law & Sci Policy Grp, Edmonton, AB, Canada

来源：

NATURE METHODS | 2012年 / 9卷 / 09期

关键词：

BIOLOGICAL SAMPLES; INFORMATION; BANKING; CHOICE; VIEWS; MODEL;

D O I：

10.1038/nmeth.2142

中图分类号：

Q5 [生物化学];

学科分类号：

071010 ; 081704 ;

摘要：

Many scholars claim there is a consensus on broad consent for biobanking. We analyzed the literature in PubMed and found no evidence for consensus. Public perception studies report mixed findings on consent, but many biobanks adopt broad consent. A belief in consensus may stem from knowledge of biobank consent practices.

引用

页码：885 / 888

页数：4

共 26 条

[1] Saudi views on consenting for research on medical records and leftover tissue samples
Al-Qadire, Mohammad M.
Hammami, Muhammad M.
Abdulhameed, Hunida M.
Al Gaai, Eman A.
[J]. BMC MEDICAL ETHICS, 2010, 11
[2] Qualitative thematic analysis of consent forms used in cancer genome sequencing
Allen, Clarissa
Foulkes, William D.
[J]. BMC MEDICAL ETHICS, 2011, 12
[3] [Anonymous], 2010, BIOBANKS EUROPE PROS, DOI DOI 10.2791/41701
[4] Caulfield T., 2009, Medical Law International, V10, P85, DOI DOI 10.1177/096853320901000201
[5] Caulfield T., BIOPRESERV IN PRESS
[6] Caulfield Timothy., 2007, KINGS LJ, V18, P209, DOI [10.1080/09615768.2007.11427674, DOI 10.1080/09615768.2007.11427674]
[7] Consent and anonymization in research involving biobanks - Differing terms and norms present serious barriers to an international framework
Elger, BS
Caplan, AL
[J]. EMBO REPORTS, 2006, 7 (07) : 661 - 666
[8] Patients attending tertiary referral urology clinics: willingness to participate in tissue banking
Fitzpatrick, Patricia E.
McKenzie, Kenneth D.
Beasley, Avril
Sheehan, John D.
[J]. BJU INTERNATIONAL, 2009, 104 (02) : 209 - 213
[9] Ethics and biobanks
Hansson, M. G.
[J]. BRITISH JOURNAL OF CANCER, 2009, 100 (01) : 8 - 12
[10] Public Opinion about the Importance of Privacy in Biobank Research
Kaufman, David J.
Murphy-Bollinger, Juli
Scott, Joan
Hudson, Kathy L.
[J]. AMERICAN JOURNAL OF HUMAN GENETICS, 2009, 85 (05) : 643 - 654

← 1 2 3 →