SATIS-STROKE: A SATISFACTION MEASURE OF ACTIVITIES AND PARTICIPATION IN THE ACTUAL ENVIRONMENT EXPERIENCED BY PATIENTS WITH CHRONIC STROKE

Objective: To develop a satisfaction measure of activities and participation in the actual environment experienced by patients after chronic stroke using the Rasch measurement model. Methods: A 36-item questionnaire based on the International Classification of Functioning, Disability and Health model and existing scales was developed. The questionnaire was submitted to 101 patients (70% men; mean age 63 years) without major intellectual deficits who live in different types of residences (homes and nursing homes). The questionnaire was resubmitted after one month. The patients' responses were analysed separately using RUMM Rasch software to select items presenting an ordered rating scale, sharing the same discrimination, and fitting a unidimensional scale. Results: The final SATIS-Stroke scale consisted of 36 items rated by the patients. The patients reported perceptions over a wider range of measurement with high reliability (r = 0.94) and good reproducibility over time (intraclass correlation coefficient = 0.98). The SATIS-Stroke measures are significantly related to age and place of residence. Conclusion: SATIS-Stroke is a functional scale specifically developed to measure satisfaction with activities and participation, providing goal-setting guidelines for treatment planning. Its range and measurement precision are appropriate for clinical practice.