A Web-Based Interactive Diabetes Registry for Health Care Management and Planning in Saudi Arabia

被引:28
作者
Al-Rubeaan, Khalid A. [1 ]
Youssef, Amira M. [2 ]
Subhani, Shazia N. [3 ]
Ahmad, Najlaa A. [4 ]
Al-Sharqawi, Ahmad H. [4 ]
Ibrahim, Heba M. [2 ]
机构
[1] King Saud Univ, Strateg Ctr Diabet Res, Univ Diabet Ctr, Riyadh 11415, Saudi Arabia
[2] King Saud Univ, Registry Dept, Univ Diabet Ctr, Riyadh 11415, Saudi Arabia
[3] King Faisal Specialist Hosp & Res Ctr, Registries Core Facil Biostat Epidemiol & Sci Com, Riyadh 11211, Saudi Arabia
[4] King Saud Univ, Dept Biostat, Univ Diabet Ctr, Riyadh 11415, Saudi Arabia
关键词
diabetes mellitus; registries; geographic information systems; medical records systems; computerized; health planning; research report; data bank; factual; epidemiology; PREVALENCE; MELLITUS;
D O I
10.2196/jmir.2722
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Worldwide, eHealth is a rapidly growing technology. It provides good quality health services at lower cost and increased availability. Diabetes has reached an epidemic stage in Saudi Arabia and has a medical and economic impact at a countrywide level. Data are greatly needed to better understand and plan to prevent and manage this medical problem. Objective: The Saudi National Diabetes Registry (SNDR) is an electronic medical file supported by clinical, investigational, and management data. It functions as a monitoring tool for medical, social, and cultural bases for primary and secondary prevention programs. Economic impact, in the form of direct or indirect cost, is part of the registry's scope. The registry's geographic information system (GIS) produces a variety of maps for diabetes and associated diseases. In addition to availability and distribution of health facilities in the Kingdom, GIS data provide health planners with the necessary information to make informed decisions. The electronic data bank serves as a research tool to help researchers for both prospective and retrospective studies. Methods: A Web-based interactive GIS system was designed to serve as an electronic medical file for diabetic patients retrieving data from medical files by trained registrars. Data was audited and cleaned before it was archived in the electronic filing system. It was then used to produce epidemiologic, economic, and geographic reports. A total of 84,942 patients were registered from 2000 to 2012, growing by 10% annually. Results: The SNDR reporting system for epidemiology data gives better understanding of the disease pattern, types, and gender characteristics. Part of the reporting system is to assess quality of health care using different parameters, such as HbA1c, that gives an impression of good diabetes control for each institute. Economic reports give accurate cost estimation of different services given to diabetic patients, such as the annual insulin cost per patient for type 1, type 2, and gestational diabetes, which are 1155 SR (US $308), 1406 SR (US $375), and 1002 SR (US $267), respectively. Of this, 72.02% of the total insulin cost is spent on type 2 patients and 55.39% is in the form of premixed insulin. The SNDR can provide an accurate assessment of the services provided for research purposes. For example, only 27.00% of registered patients had an ophthalmic examination and only 71.10% of patients with proliferative retinopathy had laser therapy. Conclusions: The SNDR is an effective electronic medical file that can provide epidemiologic, economic, and geographic reports that can be used for disease management and health care planning. It is a useful tool for research and disease health care quality monitoring.
引用
收藏
页码:291 / 304
页数:14
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