Disclosing Individual Genetic Research Results to Deceased Participants' Relatives by Means of a Qualified Disclosure Policy

被引:15
作者
Bredenoord, Annelien L. [1 ]
van Delden, Johannes J. M. [1 ]
机构
[1] Univ Med Ctr Utrecht, Julius Ctr Hlth Sci & Primary Care, Dept Med Eth, NL-3508 A Utrecht, Netherlands
关键词
D O I
10.1080/15265161.2012.699145
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
引用
收藏
页码:10 / 12
页数:4
相关论文
共 7 条
[1]   Feedback of Individual Genetic Results to Research Participants: In Favor of a Qualified Disclosure Policy [J].
Bredenoord, Annelien L. ;
Onland-Moret, N. Charlotte ;
Van Delden, Johannes J. M. .
HUMAN MUTATION, 2011, 32 (08) :861-867
[2]   Disclosure of individual genetic data to research participants: the debate reconsidered [J].
Bredenoord, Annelien L. ;
Kroes, Hester Y. ;
Cuppen, Edwin ;
Parker, Michael ;
van Delden, Johannes J. M. .
TRENDS IN GENETICS, 2011, 27 (02) :41-47
[3]   Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives [J].
Chan, Ben ;
Facio, Flavia M. ;
Eidem, Haley ;
Hull, Sara Chandros ;
Biesecker, Leslie G. ;
Berkman, Benjamin E. .
AMERICAN JOURNAL OF BIOETHICS, 2012, 12 (10) :1-8
[4]  
Isasi R, 2012, REGEN MED, V7, P439, DOI [10.2217/RME.12.23, 10.2217/rme.12.23]
[5]   Return of "Accurate" and "Actionable" Results: Yes! [J].
Knoppers, Bartha Maria ;
Laberge, Claude .
AMERICAN JOURNAL OF BIOETHICS, 2009, 9 (6-7) :107-109
[6]  
Thaler R., 2008, NUDGE
[7]   Managing incidental findings and research results in genomic research involving biobanks and archived data sets [J].
Wolf, Susan M. ;
Crock, Brittney N. ;
Van Ness, Brian ;
Lawrenz, Frances ;
Kahn, Jeffrey P. ;
Beskow, Laura M. ;
Cho, Mildred K. ;
Christman, Michael F. ;
Green, Robert C. ;
Hall, Ralph ;
Illes, Judy ;
Keane, Moira ;
Knoppers, Bartha M. ;
Koenig, Barbara A. ;
Kohane, Isaac S. ;
LeRoy, Bonnie ;
Maschke, Karen J. ;
McGeveran, William ;
Ossorio, Pilar ;
Parker, Lisa S. ;
Petersen, Gloria M. ;
Richardson, Henry S. ;
Scott, Joan A. ;
Terry, Sharon F. ;
Wilfond, Benjamin S. ;
Wolf, Wendy A. .
GENETICS IN MEDICINE, 2012, 14 (04) :361-384