Symptom distress and life situation in adolescents with cancer

被引:110
作者
Enskar, K [1 ]
Carlsson, M [1 ]
Golsater, M [1 ]
Hamrin, E [1 ]
机构
[1] UNIV UPPSALA, CTR CARING SCI, UPPSALA, SWEDEN
基金
美国国家科学基金会;
关键词
adolescents with cancer; symptom distress; life situation; instrument development;
D O I
10.1097/00002820-199702000-00004
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Having a life-threatening disease like cancer during adolescence poses a number of problems. The purpose of this study was to identify the adolescent's own experience of areas of the life situation affected by the disease and problems related to if. Ten adolescents with varying diagnoses and treatment weve interviewed. They also completed a quantitative measurement of problems. The result shows eight domains and 24 subdomains influencing the experience of life situation. Those were disease and treatment (sine effects, isolation, medical procedures), identification (others ave ill, appearance), feelings and reactions (mood, self-image, meaning hope), coping (positive thinking, distraction, positive effects), togetherness (family, friends, school), support (family and friends, the youth association, professional support), reactions of the families (parents, siblings), and quality of care (professionalism, information, organization, equipment). The problems mentioned in the interviews are also compared with the quantitative measurement used The adolescents mentioned 77 problems in the interviews, of which 17 were not on the list of problems. Of those 17, seven dealt with physical problems, and six were problems concerning the quality of care. They ranked waiting and depending on parents as the worst problems for themselves from the list of problems.
引用
收藏
页码:23 / 33
页数:11
相关论文
共 31 条
[1]   ASSESSMENT OF COPING WITH MUSCULAR-DYSTROPHY - A METHODOLOGICAL EVALUATION [J].
AHLSTROM, G ;
SJODEN, PO .
JOURNAL OF ADVANCED NURSING, 1994, 20 (02) :314-323
[2]  
AHLSTROM G, UNPUB COPING MUSCULA
[3]  
CHANG PN, 1990, PEDIATRICIAN, V18, P20
[4]   A COEFFICIENT OF AGREEMENT FOR NOMINAL SCALES [J].
COHEN, J .
EDUCATIONAL AND PSYCHOLOGICAL MEASUREMENT, 1960, 20 (01) :37-46
[5]  
DEATRICK J, 1991, QUALITATIVE NURSING, P127
[6]  
Ellis J, 1991, MCN Am J Matern Child Nurs, V16, P157, DOI 10.1097/00005721-199105000-00012
[7]  
ENSKAR K, IN PRESS J PEDIAT ON
[8]  
FLATLEY BP, 1992, RES NURS HLTH, V15, P153
[9]   SUITABILITY OF THE PEDIATRIC SETTING FOR HOSPITALIZED ADOLESCENTS [J].
GILLIES, ML ;
PARRYJONES, WL .
ARCHIVES OF DISEASE IN CHILDHOOD, 1992, 67 (12) :1506-1509
[10]  
HINDS P, 1996, J PEDIATR ONCOL NURS, V13, P61