Quality of life in hospice patients -: A pilot study

被引:90
作者
Bretscher, M
Rummans, T
Sloan, J
Kaur, J
Bartlett, A
Borkenhagen, L
Loprinzi, C
机构
[1] Mayo Clin, Dept Psychiat, Rochester, MN 55905 USA
[2] Mayo Clin, Mayo Hospice Program, Rochester, MN 55905 USA
[3] Mayo Clin, Dept Oncol, Rochester, MN 55905 USA
[4] Mayo Clin, Dept Canc Ctr Stat, Rochester, MN 55905 USA
[5] Springfield Clin & Mem Reg Canc Ctr, Springfield, IL USA
关键词
D O I
10.1016/S0033-3182(99)71224-7
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
The general public and the medical community often perceive dying patients' quality of life (QOL) as rapidly deteriorating before death. However with appropriate palliative services, this effect may be positively modified. Objective data are lacking on the tote experience of dying from the point of view of the patient that this pilot study. begins to address. Patient caregivers, and staff in our hospice program completed questionnaires evaluating the patient's QOL every 2 weeks until the patient's death. This pilot study found that patients' QOL was relatively high and stable over time. Primary caregivers rated the patient's QOL lower than patient self-ratings, whereas the hospice staff evaluated the patient's QOL similarly to the patient. Many dying patients suffer and are perceived as having no QOL in the final days by their caregivers. This perception may be modified to maintain one's QOL with the help of palliative medical services, thereby relieving the suffering of those who are actively, facing death.
引用
收藏
页码:309 / 313
页数:5
相关论文
共 15 条
[1]   NORMS FOR THE SPIRITUAL WELL-BEING SCALE [J].
BUFFORD, RK ;
PALOUTZIAN, RF ;
ELLISON, CW .
JOURNAL OF PSYCHOLOGY AND THEOLOGY, 1991, 19 (01) :56-70
[2]  
CELLA DF, 1995, SEMIN ONCOL, V22, P73
[3]   MINI-MENTAL STATE - PRACTICAL METHOD FOR GRADING COGNITIVE STATE OF PATIENTS FOR CLINICIAN [J].
FOLSTEIN, MF ;
FOLSTEIN, SE ;
MCHUGH, PR .
JOURNAL OF PSYCHIATRIC RESEARCH, 1975, 12 (03) :189-198
[4]   ASSESSMENT OF THE QUALITY OF LIFE OF PATIENTS WITH ADVANCED CANCER [J].
GOUGH, IR ;
FURNIVAL, CM ;
SCHILDER, L ;
GROVE, W .
EUROPEAN JOURNAL OF CANCER & CLINICAL ONCOLOGY, 1983, 19 (08) :1161-1165
[5]   AN OVERVIEW OF NATIONAL HOSPICE STUDY FINDINGS [J].
GREER, DS ;
MORT, V .
JOURNAL OF CHRONIC DISEASES, 1986, 39 (01) :5-7
[6]  
Jennings B M, 1981, Cancer Nurs, V4, P485
[7]   A CONTROLLED TRIAL TO IMPROVE CARE FOR SERIOUSLY ILL HOSPITALIZED-PATIENTS - THE STUDY TO UNDERSTAND PROGNOSES AND PREFERENCES FOR OUTCOMES AND RISKS OF TREATMENTS (SUPPORT) [J].
KNAUS, WA ;
CONNORS, AF ;
DAWSON, NV ;
DESBIENS, NA ;
FULKERSON, WJ ;
GOLDMAN, L ;
LYNN, J ;
OYE, RK ;
BERGNER, M ;
DAMIANO, A ;
HAKIM, R ;
MURPHY, DJ ;
TENO, J ;
VIRNIG, B ;
WAGNER, DP ;
WU, AW ;
YASUI, Y ;
ROBINSON, DK ;
KRELING, B ;
DULAC, J ;
BAKER, R ;
HOLAYEL, S ;
MEEKS, T ;
MUSTAFA, M ;
VEGARRA, J ;
ALZOLA, C ;
HARRELL, FE ;
COOK, EF ;
HAMEL, MB ;
PETERSON, L ;
PHILLIPS, RS ;
TSEVAT, J ;
FORROW, L ;
LESKY, L ;
DAVIS, R ;
KRESSIN, N ;
SOLZAN, J ;
PUOPOLO, AL ;
BARRETT, LQ ;
BUCKO, N ;
BROWN, D ;
BURNS, M ;
FOSKETT, C ;
HOZID, A ;
KEOHANE, C ;
MARTINEZ, C ;
MCWEENEY, D ;
MELIA, D ;
OTTO, S ;
SHEEHAN, K .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 1995, 274 (20) :1591-1598
[8]   Perceptions by family members of the dying experience of older and seriously ill patients [J].
Lynn, J ;
Teno, JM ;
Phillips, RS ;
Wu, AW ;
Desbiens, N ;
Harrold, J ;
Claessens, MT ;
Wenger, N ;
Kreling, B ;
Connors, AF .
ANNALS OF INTERNAL MEDICINE, 1997, 126 (02) :97-+
[9]  
McMillan S C, 1996, Oncol Nurs Forum, V23, P1221
[10]  
MCMILLAN SC, 1994, CANCER NURS, V17, P52