Sudden illness and biographical flow in narratives of stroke recovery

被引:213
作者
Faircloth, CA [1 ]
Boylstein, C
Rittman, M
Young, ME
Gubrium, J
机构
[1] N Florida S Georgia VA Med Ctr, Rehabil Outcomes Res Ctr, Gainesville, FL 32608 USA
[2] Univ Florida, Dept Rehabil Counseling, Gainesville, FL 32611 USA
[3] Univ Missouri, Dept Sociol, Columbia, MO 65211 USA
关键词
biographical flow; biographical disruption; chronic illness; stroke recovery;
D O I
10.1111/j.1467-9566.2004.00388.x
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The conceptual framework of biographical disruption has dominated studies into the everyday experience of chronic illness. Biographical disruption assumes that the illness presents the person with an intense crisis, regardless of other mitigating factors. However, our data suggests that the lives of people who have a particular illness that is notably marked by sudden onset are not inevitably disrupted. Extensive qualitative interviews were conducted with a sample of veteran non-Hispanic white, African-American, and Puerto Rican Hispanic stroke survivors, at one month, six months and twelve months after being discharged home from hospital. Narrative excerpts are presented to describe specific discursive resources these people use that offset the disrupting connotations of stroke. Our findings suggest a biographical flow more than a biographical disruption to specific chronic illnesses once certain social indicators such as age, other health concerns and previous knowledge of the illness experience, are taken into account. This difference in biographical construction of the lived self has been largely ignored in the literature. Treating all survivor experiences as universal glosses over some important aspects of the survival experience, resulting in poorly designed interventions, and in turn, low outcomes for particular people.
引用
收藏
页码:242 / 261
页数:20
相关论文
共 44 条
[11]  
Bury Michael., 1997, Health and Illness in a Changing Society
[12]   FROM BIOGRAPHICAL DISRUPTION TO BIOGRAPHICAL REINFORCEMENT - THE CASE OF HIV-POSITIVE MEN [J].
CARRICABURU, D ;
PIERRET, J .
SOCIOLOGY OF HEALTH & ILLNESS, 1995, 17 (01) :65-88
[13]   A NEW METHOD OF CLASSIFYING PROGNOSTIC CO-MORBIDITY IN LONGITUDINAL-STUDIES - DEVELOPMENT AND VALIDATION [J].
CHARLSON, ME ;
POMPEI, P ;
ALES, KL ;
MACKENZIE, CR .
JOURNAL OF CHRONIC DISEASES, 1987, 40 (05) :373-383
[14]  
Charmaz Kathy., 1991, Good Days, Bad Days: The Self in Chronic Illness and Time
[15]  
Corbin J., 1987, RES SOCIOLOGY HLTH C, V6, P249
[16]  
Corbin J., 1988, UNENDING WORK CARE M
[17]   Self-body split: issues of identity in physical recovery following a stroke [J].
Ellis-Hill, CS ;
Payne, S ;
Ward, C .
DISABILITY AND REHABILITATION, 2000, 22 (16) :725-733
[18]  
Foucault Michel., 2003, The Birth of the Clinic
[19]  
FUJIURA GT, 2001, HDB DISABILITY STUDI
[20]  
GOOD BJ, 1993, CULT MED PSYCHIAT, V16, P427