Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal unit policies in Europe

被引:91
作者
Cuttini, M
Rebagliato, M
Bortoli, P
Hansen, G
de Leeuw, R
Lenoir, S
Persson, J
Reid, M
Schroell, M
de Vonderweid, U
Kaminski, M
Lenard, H
Orzalesi, M
Saracci, R
机构
[1] Burlo Garofolo Childrens Hosp, Epidemiol Unit, I-34137 Trieste, Italy
[2] Burlo Garofolo Childrens Hosp, Neonatal Intens Care Unit, I-34137 Trieste, Italy
[3] Miguel Hernandez Univ, Dept Publ Hlth, Alicante, Spain
[4] Univ Amsterdam, Dept Neonatol, NL-1012 WX Amsterdam, Netherlands
[5] Fac Med Toulouse, INSERM, CJF 89 08, Unit Res Reprod, F-31073 Toulouse, France
[6] Linkoping Univ, Ctr Med Technol Assessment, S-58183 Linkoping, Sweden
[7] Univ Glasgow, Dept Publ Hlth, Glasgow G12 8QQ, Lanark, Scotland
[8] Luxembourg Hosp, Dept Paediat, Luxembourg, Luxembourg
[9] INSERM, U149, Unit Res Maternal & Child Hlth, Villejuif, France
[10] Univ Dusseldorf, Dept Paediat, D-4000 Dusseldorf, Germany
[11] Bambino Gesu Childrens Hosp, Neonatal Intens Care Unit, Rome, Italy
[12] Natl Res Council, Div Epidemiol, Pisa, Italy
来源
ARCHIVES OF DISEASE IN CHILDHOOD-FETAL AND NEONATAL EDITION | 1999年 / 81卷 / 02期
关键词
intensive care; parental visiting; information; ethics;
D O I
10.1136/fn.81.2.F84
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Aim-To compare neonatal intensive care unit policies towards parents' visiting, information, and participation in ethical decisions across eight European countries. Methods-One hundred and twenty three units, selected by random or exhaustive sampling, were recruited, with an overall response rate of 87%. Results-Proportions of units allowing unrestricted parental visiting ranged from 11% in Spain to 100% in Great Britain, Luxembourg and Sweden, and those explicitly involving parents in decisions from 19% in Italy to 89% in Great Britain. Policies concerning information also varied. Conclusions-These variations cannot be explained by differences in unit characteristics, such as level, size, and availability of resources. As the importance of parental participation in the care of their babies is increasingly being recognised, these findings have implications for neonatal intensive care organisation and policy.
引用
收藏
页码:F84 / F90
页数:7
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