Ethics and Genomic Incidental Findings

被引：130

作者：

McGuire, Amy L. ^{[1
]}

Joffe, Steven ^{[2
]}

Koenig, Barbara A. ^{[3
]}

Biesecker, Barbara B. ^{[4
]}

McCullough, Laurence B. ^{[1
]}

Blumenthal-Barby, Jennifer S. ^{[1
]}

Caulfield, Timothy ^{[5
]}

Terry, Sharon F. ^{[6
]}

Green, Robert C. ^{[7
,8
]}

机构：

[1] Baylor Coll Med, Ctr Med Eth & Hlth Policy, Houston, TX 77030 USA

[2] Harvard Univ, Dana Farber Canc Inst, Boston Childrens Hosp, Sch Med,Dept Pediat Oncol,Dept Med, Boston, MA 02215 USA

[3] Univ Calif San Francisco, Inst Hlth & Aging, Dept Anthropol Hist & Social Med, Dept Social & Behav Sci, San Francisco, CA 94143 USA

[4] NHGRI, Social & Behav Res Branch, Bethesda, MD 20892 USA

[5] Univ Alberta, Hlth Law Inst, Edmonton, AB T6G 2H5, Canada

[6] Genet Alliance, Washington, DC 20008 USA

[7] Brigham & Womens Hosp, Dept Med, Div Genet, Boston, MA 02115 USA

[8] Harvard Univ, Sch Med, Boston, MA 02115 USA

来源：

SCIENCE | 2013年 / 340卷 / 6136期

关键词：

D O I：

10.1126/science.1240156

中图分类号：

O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];

学科分类号：

07 ; 0710 ; 09 ;

摘要：

引用

页码：1047 / 1048

页数：2

共 11 条

[1]

ACMG, 2013, GENET MED

[2] Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing [J].

Allyse, Megan ;

Michie, Marsha .

TRENDS IN BIOTECHNOLOGY, 2013, 31 (08) :439-441

[3]

Faden RR., 1986, A history and theory of informed consent

[4] Ethical and Policy Issues in Genetic Testing and Screening of Children [J].

Fallat, Mary E. ;

Katz, Aviva L. ;

Mercurio, Mark R. ;

Moon, Margaret R. ;

Okun, Alexander L. ;

Webb, Sally A. ;

Weise, Kathryn L. ;

Saul, Robert A. ;

Braddock, Stephen R. ;

Chen, Emily ;

Freedenberg, Debra L. ;

Jones, Marilyn C. ;

Perrin, James M. ;

Tarini, Beth Anne ;

David, Karen L. ;

Bartoshesky, Louis E. ;

Anderson, Rebecca R. ;

Best, Robert G. ;

Hoffman, Jodi D. ;

Ito, Masamichi ;

Lemke, Amy A. ;

Murray, Mitzi L. ;

Sharp, Richard R. ;

Bhambhani, Vikas .

PEDIATRICS, 2013, 131 (03) :620-622

[5]

Green RC, 2013, GENET MED

[6]

Green RC, 2013, GENOMIC AND PERSONALIZED MEDICINE, VOL 1-2, 2ND EDITION, P102, DOI 10.1016/B978-0-12-382227-7.00009-4

[7] The Indispensable Role of Professional Judgment in Genomic Medicine [J].

McGuire, Amy L. ;

McCullough, Laurence B. ;

Evans, James P. .

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2013, 309 (14) :1465-1466

[8] Currents in Contemporary Bioethics [J].

McGuire, Amy L. ;

Wang, Melody J. ;

Probst, Frank J. .

JOURNAL OF LAW MEDICINE & ETHICS, 2012, 40 (04) :1040-1046

[9]

NHGRI, 2012, CLIN SEQ EXPL RES

[10] Genetic links, family ties, and social bonds: Rights and responsibilities in the face of genetic knowledge [J].

Rhodes, R .

JOURNAL OF MEDICINE AND PHILOSOPHY, 1998, 23 (01) :10-30

← 1 2 →