Nothing is really safe': a focus group study on the processes of anonymizing and sharing of health data for research purposes

被引：37

作者：

Haddow, Gill ^{[1
]}

Bruce, Ann ^{[1
]}

Sathanandam, Shiva ^{[2
]}

Wyatt, Jeremy C. ^{[3
]}

机构：

[1] Univ Edinburgh, INNOGEN, ESHC Ctr Social & Econ Res Innovat Genom, Edinburgh, Midlothian, Scotland

[2] Univ Dundee, Hlth Informat Ctr, Dundee, Scotland

[3] Univ Warwick, Inst Digital Healthcare, Coventry CV4 7AL, W Midlands, England

来源：

JOURNAL OF EVALUATION IN CLINICAL PRACTICE | 2011年 / 17卷 / 06期

关键词：

anonymized data; consent; lay views; warehouse model; CONSENT; TRUST;

D O I：

10.1111/j.1365-2753.2010.01488.x

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Rationale and objectives The availability of anonymized data is a keystone of medical research, yet little is known about lay views towards the process of anonymization or on the way that anonymized medical data are transferred to researchers.

引用

页码：1140 / 1146

页数：7

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