Development of quality indicators to evaluate the monitoring of SLE patients in routine clinical practice

被引:66
作者
Mosca, M. [1 ]
Tani, C. [1 ]
Aringer, M. [2 ]
Bombardieri, S. [1 ]
Boumpas, D. [3 ]
Cervera, R. [4 ]
Doria, A. [5 ]
Jayne, D. [6 ]
Khamashta, M. A. [7 ]
Kuhn, A. [8 ]
Gordon, C. [9 ]
Petri, M. [10 ]
Schneider, M. [11 ]
Shoenfeld, Y. [12 ,13 ,14 ,15 ]
Smolen, J. S. [16 ]
Talarico, R. [1 ]
Tincani, A. [17 ,18 ]
Ward, M. M. [19 ]
Werth, V. P. [20 ]
Carmona, L. [21 ]
机构
[1] Univ Pisa, Rheumatol Unit, Dept Internal Med, Pisa, Italy
[2] Tech Univ Dresden, Univ Clin Ctr Carl Gustav Carus, Dresden, Germany
[3] Univ Crete, Sch Med, Iraklion, Greece
[4] Hosp Clin Barcelona, Dept Autoimmune Dis, Barcelona, Catalonia, Spain
[5] Univ Padua, Div Rheumatol, Padua, Italy
[6] Addenbrookes Hosp, Renal Unit, Cambridge, England
[7] St Thomas Hosp, Rayne Inst, Lupus Res Unit, London SE1 7EH, England
[8] Univ Munster, Dept Dermatol, D-4400 Munster, Germany
[9] Univ Birmingham, Sch Immun & Infect, Birmingham B15 2TT, W Midlands, England
[10] Johns Hopkins Univ, Sch Med, Div Rheumatol, Baltimore, MD USA
[11] Univ Dusseldorf, Clin Endocrinol Diabetol & Rheumatol, Dusseldorf, Germany
[12] Chaim Sheba Med Ctr, Dept Med B, IL-52621 Tel Hashomer, Israel
[13] Chaim Sheba Med Ctr, Ctr Autoimmune Dis, IL-52621 Tel Hashomer, Israel
[14] Tel Aviv Univ, Sackler Fac Med, IL-69978 Tel Aviv, Israel
[15] Tel Aviv Univ, Zabludowitcz Ctr Autoimmun, IL-69978 Tel Aviv, Israel
[16] Med Univ Vienna, Dept Rheumatol, Vienna, Austria
[17] Spedali Civil Brescia, UO Reumatol & Immunol Clin, I-25125 Brescia, Italy
[18] Univ Brescia, Brescia, Italy
[19] NIAMSD, Intramural Res Program, NIH, US Dept HHS, Bethesda, MD 20892 USA
[20] Univ Penn, Philadelphia, PA 19104 USA
[21] Fdn Espanola Reumatol, Res Unit, Madrid, Spain
关键词
Quality indicators; Quality of care; Systemic lupus erythematosus; Routine clinical practice; SYSTEMIC-LUPUS-ERYTHEMATOSUS; HEALTH-CARE QUALITY; OF-CARE; RHEUMATOLOGY; RECOMMENDATIONS; IMPLEMENTATION; SET;
D O I
10.1016/j.autrev.2010.12.008
中图分类号
R392 [医学免疫学]; Q939.91 [免疫学];
学科分类号
100102 ;
摘要
The assessment of systemic lupus erythematosus (SLE) patients in routine clinical practice is mainly based on the experience of the treating physician. This carries the risk of unwanted variability. Variability may have an impact on the quality of care offered to SLE patients, thereby affecting outcomes. Recommendations represent systematically developed statements to help practitioners in reducing variability. However, major difficulties arise in the application of recommendations into clinical practice. In this respect, the use of quality indicators may raise the awareness among rheumatologists regarding potential deficiencies in services and improve the quality of health care. The aim of this study was to develop a set of quality indicators (QI) for SLE by translating into QIs the recently developed EULAR Recommendations for monitoring SLE patients in routine clinical practice and observational studies. Eleven QIs have been developed referring to the use of validated activity and damage indices in routine clinical practice, general evaluation of drug toxicity, evaluation of comorbidities, eye evaluation, laboratory assessment, evaluation of the presence of chronic viral infections, documentation of vaccination and of antibody testing at baseline. A disease specific set of quality assessment tools should help physicians deliver high quality of care across populations. Routine updates will be needed. (C) 2011 Elsevier B.V. All rights reserved.
引用
收藏
页码:383 / 388
页数:6
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