Process studies in genetic counseling: Peering into the black box

被引:97
作者
Biesecker, BB
Peters, KF
机构
[1] NHGRI, Med Genet Branch, NIH, Bethesda, MD 20892 USA
[2] Johns Hopkins Univ, NHGRI, Counseling Training Program, Baltimore, MD 21218 USA
来源
AMERICAN JOURNAL OF MEDICAL GENETICS | 2001年 / 106卷 / 03期
关键词
genetic counseling; process studies process analysis; counseling research; genetic counseling definition; genetic counseling goals; psychoeducational process;
D O I
10.1002/ajmg.10004
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
Genetic counseling is a dynamic psychoeducational process. Yet we know very little about its interior. Process research explores what transpires between providers and their clients and can serve to provide insight into unknown practice dimensions. The few process studies that have been conducted in genetic counseling provide a glimpse into the Black Box, but more of this type of research is needed to examine the contents. To achieve success with process studies a contemporary definition of genetic counseling is proposed. Thoughtfully designed process studies in genetic counseling will provide the data to refine the definition and identify the components of counseling, the communication process between provider and client, the therapeutic interventions used by counselors, and the needs, attitudes and expectations of clients. Overall, process studies will contribute to a more accurate understanding of the practice of genetic counseling.
引用
收藏
页码:191 / 198
页数:8
相关论文
共 58 条
[1]  
[Anonymous], 2000, Psychosocial Genetic Counseling
[2]  
[Anonymous], TEACHING PSYCHOL SKI
[3]   Revealed identity: A study of the process of genetic counselling [J].
Armstrong, D ;
Michie, S ;
Marteau, T .
SOCIAL SCIENCE & MEDICINE, 1998, 47 (11) :1653-1658
[4]  
BARBER M, 2000, THESIS J HOPKINS U B
[5]  
BARKER C, 1985, NEW DEV CLIN PSYCHOL
[6]  
BENKENDORF J, 2001, AM J MED GENET C, P106
[7]   Prenatal genetic testing: Content of discussions between obstetric providers and pregnant women [J].
Bernhardt, BA ;
Geller, G ;
Doksum, T ;
Larson, SM ;
Roter, D ;
Holtzman, NA .
OBSTETRICS AND GYNECOLOGY, 1998, 91 (05) :648-655
[8]  
Bernhardt BA, 2000, AM J MED GENET, V94, P189, DOI 10.1002/1096-8628(20000918)94:3<189::AID-AJMG3>3.0.CO
[9]  
2-E
[10]  
Clarke A, 1996, CLIN GENET, V50, P462