EUSTAR biobanking: recommendations for the collection, storage and distribution of biospecimens in scleroderma research

被引：30

作者：

Beyer, Christian ^{[3
,4
]}

Distler, Joerg H. W. ^{[3
,4
]}

Allanore, Yannick ^{[5
]}

Aringer, Martin ^{[6
]}

Avouac, Jerome ^{[3
,4
,5
]}

Czirjak, Laszlo ^{[7
]}

Cutolo, Maurizio ^{[8
,9
]}

Damjanov, Nemanja ^{[10
]}

Del Galdo, Francesco ^{[11
]}

Fligelstone, Kim ^{[12
]}

Guiducci, Serena ^{[13
]}

Kowal-Bielecka, Otylia ^{[14
]}

van Laar, Jacob M. ^{[15
]}

Martucci-Cerinic, Marco ^{[13
]}

Mueller-Ladner, Ulf ^{[16
,17
]}

Riemekasten, Gabriela ^{[18
]}

Tarner, Ingo H. ^{[16
,17
]}

Tyndall, Alan ^{[19
]}

Kennedy, Ann Tyrrell ^{[12
]}

Valentini, Gabriele ^{[20
]}

Vettori, Serena ^{[20
]}

Walker, Ulrich A. ^{[19
]}

Denton, Christopher ^{[21
]}

Distler, Oliver ^{[1
,2
]}

机构：

[1] Univ Zurich Hosp, Dept Rheumatol, Ctr Expt Rheumatol, CH-8091 Zurich, Switzerland

[2] Univ Zurich Hosp, Ctr Integrat Human Physiol, CH-8091 Zurich, Switzerland

[3] Univ Erlangen Nurnberg, Dept Internal Med 3, Erlangen, Germany

[4] Univ Erlangen Nurnberg, Inst Clin Immunol, Erlangen, Germany

[5] Univ Paris 05, Rheumatol Dept A, Paris, France

[6] Carl Gustav Carus Univ Dresden, Dept Rheumatol, Dresden, Germany

[7] Univ Pecs, Dept Immunol & Rheumatol, Pecs, Hungary

[8] Univ Genoa, Dept Internal Med, Res Lab, I-16126 Genoa, Italy

[9] Univ Genoa, Dept Internal Med, Acad Unit Clin Rheumatol, I-16126 Genoa, Italy

[10] Univ Belgrade, Inst Rheumatol, Belgrade, Serbia

[11] St James Univ Hosp, Inst Mol Med, Sect Musculoskeletal Dis, Leeds, W Yorkshire, England

[12] FESCA, Froyennes, Belgium

[13] Univ Florence, Div Rheumatol, Dept BioMed, Florence, Italy

[14] Med Univ Bialystok, Dept Rheumatol & Internal Med, Bialystok, Poland

[15] Newcastle Univ, Inst Cellular Med, Musculoskeletal Res Grp, Newcastle Upon Tyne NE1 7RU, Tyne & Wear, England

[16] Univ Giessen, Dept Rheumatol & Internal Med, Giessen, Germany

[17] Max Planck Inst Physiol & Clin Res, Kerckhoff Klin, Dept Rheumatol Clin Immunol Osteol & Phys Med, D-6350 Bad Nauheim, Germany

[18] Charite, Dept Rheumatol & Clin Immunol, D-13353 Berlin, Germany

[19] Univ Basel, Dept Rheumatol, Basel, Switzerland

[20] Univ Naples 2, Dept Rheumatol, Naples, Italy

[21] Royal Free Hosp, Dept Rheumatol, London, England

来源：

ANNALS OF THE RHEUMATIC DISEASES | 2011年 / 70卷 / 07期

关键词：

TISSUES;

D O I：

10.1136/ard.2010.142489

中图分类号：

R5 [内科学];

学科分类号：

100201 [内科学];

摘要：

The European League Against Rheumatism Scleroderma Trials and Research Group (EUSTAR) has established an online database with clinical data of currently more than 8200 patients with systemic sclerosis (SSc). In addition to clinical research, EUSTAR fosters biomolecular studies to develop novel biomarkers and therapies for SSc. High-quality biospecimens are the basis for successful biomolecular studies. The EUSTAR biobanking group has therefore developed recommendations to standardise the collection, storage and distribution of SSc biospecimens at EUSTAR centres. These recommendations consider the scientific challenges associated with biomolecular research in SSc and the organisational requirements of EUSTAR. They were approved by the EUSTAR executive committee as well as the EUSTAR board. Once they become effective, these recommendations will be the basis for international EUSTAR studies with large numbers of SSc biospecimens. These recommendations might also be followed by other SSc consortia to enable exchange of biosamples between different SSc initiatives and might serve as a template for biobanking initiatives in other rheumatic diseases.

引用

页码：1178 / 1182

页数：5

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