The contractual genome: how direct-to-consumer genomic services may help patients take ownership of their DNA

被引:18
作者
Foster, Morris W. [1 ]
Sharp, Richard R. [2 ]
机构
[1] Univ Oklahoma, Dept Anthropol, Norman, OK 73019 USA
[2] Cleveland Clin, Dept Bioeth, Cleveland, OH 44193 USA
关键词
Consumer; Ethics; Genome-wide; Personal genome; Privacy; Whole-genome;
D O I
10.2217/17410541.5.4.399
中图分类号
R9 [药学];
学科分类号
1007 ;
摘要
The sequencing and genotyping of personal genomes by commercial services outside traditional clinical settings may help to shape the expectations of research subjects and patients regarding control of and responsibility for the information contained in their DNA. A greater sense of individual ownership of personal genomic information could replace overly complex and paternalistic institutional proxies for the protection of personal genotype and sequence data, and also could encourage research participants and patients to become better educated regarding genetic contributors to disease.
引用
收藏
页码:399 / 404
页数:6
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