The art of recruitment: The foundation of family and linkage studies of psychiatric illness

被引:11
作者
Bonvicini, KA [1 ]
机构
[1] Yale Univ, VA LAb Psychiat Genet, VA Connecticut Hlthcare, Dept Psychiat Res 151, West Haven, CT 06516 USA
关键词
D O I
10.1111/j.1545-5300.1998.00153.x
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
Family and linkage studies of psychiatric illness involve special benefits and challenges in the field of scientific investigation. The success of a family or linkage study is dependent on, the recruitment process. The most informative and reliable method of data collection, in this field of investigation is through direct interviews with as many family members as possible. Although there are circumstances when direct interviewing is not possible, there are other circumstances, such as refusal of relatives to participate, that deserve closer scrutiny. The complexities involved in the recruitment process while conducting medical investigations have been explored in. the literature. However, special issues relevant to the recruitment process merit further exploration for working with families in the context of family and linkage studies of psychiatric illness. Careful understanding of this critical topic may minimize the incidence of family nonparticipation. in such research endeavors. This article addresses these issues as they relate to recruiting individuals and their families in this field of investigation. These issues include the role of attitudes, values and beliefs, family interaction and the identification of influential members, informal communication networking, informed consent while promoting the research, and ethical concerns.
引用
收藏
页码:153 / 165
页数:13
相关论文
共 33 条
[21]   TRIBULATIONS FOR CLINICAL-TRIALS [J].
MACINTYRE, IMC .
BRITISH MEDICAL JOURNAL, 1991, 302 (6785) :1099-1100
[22]  
McGoldrick M., 1982, ETHNICITY FAMILY THE
[23]  
MENDLEWICZ J, 1975, ARCH GEN PSYCHIAT, V32, P309
[24]   HAS SOCIAL-PSYCHIATRY MET ITS WATERLOO - METHODOLOGICAL AND ETHICAL ISSUES IN A COMMUNITY STUDY [J].
MORGAN, A ;
HARRIS, M ;
BOYCE, P ;
WILHELM, K .
AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY, 1993, 27 (03) :411-421
[25]   FAMILIES SCHEMATA OF SOCIAL RELATIONSHIPS [J].
OLIVERI, ME ;
REISS, D .
FAMILY PROCESS, 1982, 21 (03) :295-311
[26]   SENSORY EXPERIENCE AND FAMILY PROCESS - PERCEPTUAL STYLES TEND TO RUN IN BUT NOT NECESSARILY RUN FAMILIES [J].
REISS, D ;
OLIVERI, ME .
FAMILY PROCESS, 1983, 22 (03) :289-308
[27]   A STUDY OF WOMEN WHO REFUSED TO PARTICIPATE IN A COMMUNITY SURVEY OF PSYCHIATRIC-DISORDER [J].
ROMANSCLARKSON, SE ;
WALTON, VA ;
HERBISON, GP ;
MULLEN, PE .
AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY, 1988, 22 (01) :19-29
[28]   ETHICAL PROBLEMS IN GENETIC-LINKAGE STUDIES [J].
SHARP, CW ;
WALKER, M ;
BLACKWOOD, DHR .
BRITISH JOURNAL OF PSYCHIATRY, 1992, 160 :864-864
[29]  
SPILKER B, 1992, PATIENT RECRUITMENT
[30]   THE ULTIMATE STIGMA OF MENTAL-ILLNESS [J].
TRAD, PV .
AMERICAN JOURNAL OF PSYCHOTHERAPY, 1991, 45 (04) :463-466