The use of medical records in research: What do patients want?

被引：58

作者：

Kass, NE

Natowicz, MR

Hull, RC

Faden, RR

Plantinga, L

Gostin, LO

Slutsman, J

机构：

[1] Johns Hopkins Bioeth Inst, Baltimore, MD USA

[2] Cleveland Clin Fdn, Dept Neurol, Cleveland, OH 44195 USA

[3] NHGRI, Bioeth Res Sect, NIH, Bethesda, MD USA

[4] Johns Hopkins Univ, Phobe R Berman Bioeth Inst, Baltimore, MD 21218 USA

[5] Georgetown Univ, Washington, DC 20057 USA

[6] NCI, Canc Prevent Fellowship Program, Bethesda, MD 20892 USA

来源：

JOURNAL OF LAW MEDICINE & ETHICS | 2003年 / 31卷 / 03期

关键词：

D O I：

10.1111/j.1748-720X.2003.tb00105.x

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

Despite growing policy interest in medical privacy, few empirical data reveal patients' views concerning use of medical records for research. Based on the authors' data and those of others, this article suggests guidelines regarding obtaining consent for the use of medical records in research that attempt to respect patient autonomy and promote scientific and medical uses of this information for the public good.

引用

页码：429 / 433

页数：5

共 12 条

[1] Using patient-identifiable data for observational research and audit - Overprotection could damage the public interest [J].