Psychosocial care in family cancer clinics in The Netherlands: a brief report

被引:6
作者
Bleiker, EMA [1 ]
Grosfeld, FJM [1 ]
Hahn, DEE [1 ]
Honing, C [1 ]
机构
[1] Netherlands Canc Inst, Dept Psychosocial Res & Epidemiol, NL-1066 CX Amsterdam, Netherlands
关键词
familial cancer; genetic counselling; psychosocial care;
D O I
10.1016/S0738-3991(01)00119-7
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The present survey was undertaken to obtain a better understanding of the organisation of standard psychosocial services at the family cancer clinics in The Netherlands. Colleagues at the nine family cancer clinics in The Netherlands completed a brief questionnaire. It was found that all clinics offered professional psychosocial support for asymptomatic women from hereditary breast-ovarian cancer (HBOC) families. On average, one half-time psychosocial worker (usually a social worker and/or a psychologist) was involved in the genetic counselling. All clinics have developed education material about HBOC independently. As a result of the survey, an effort is made to coordinate the development of education material. Furthermore, it is concluded that more attention should be paid to symptomatic mutation carriers and those individuals, who receive inconclusive genetic test results. These subgroups are usually excluded from the protocols for psychosocial care in genetic counselling. (C) 2001 Elsevier Science Ireland Ltd. All rights reserved.
引用
收藏
页码:205 / 209
页数:5
相关论文
共 26 条
[1]   Genetic counseling for hereditary cancer: A pilot study on experiences of patients and family members [J].
Bleiker, EMA ;
Aaronson, NK ;
Menko, FH ;
Hahn, DEE ;
vanAsperen, CJ ;
Rutgers, EJT ;
tenKate, LP ;
Leschot, NJ .
PATIENT EDUCATION AND COUNSELING, 1997, 32 (1-2) :107-116
[2]   LOCALIZATION OF THE GENE FOR FAMILIAL ADENOMATOUS POLYPOSIS ON CHROMOSOME-5 [J].
BODMER, WF ;
BAILEY, CJ ;
BODMER, J ;
BUSSEY, HJR ;
ELLIS, A ;
GORMAN, P ;
LUCIBELLO, FC ;
MURDAY, VA ;
RIDER, SH ;
SCAMBLER, P ;
SHEER, D ;
SOLOMON, E ;
SPURR, NK .
NATURE, 1987, 328 (6131) :614-616
[3]  
CLAUS EB, 1991, AM J HUM GENET, V48, P232
[4]   Identification and mapping of type 1 neurofibromatosis (NF1) homologous loci [J].
Cummings, LM ;
Trent, JM ;
Marchuk, DA .
CYTOGENETICS AND CELL GENETICS, 1996, 73 (04) :334-340
[5]   Predicting adaptation to presymptomatic DNA testing for late onset disorders: who will experience distress? [J].
DudokdeWit, AC ;
Tibben, A ;
Duivenvoorden, HJ ;
Niermeijer, MF ;
Passchier, J .
JOURNAL OF MEDICAL GENETICS, 1998, 35 (09) :745-754
[6]  
EASTON DF, 1995, AM J HUM GENET, V56, P265
[7]   GENETIC-LINKAGE STUDIES MAP THE MULTIPLE ENDOCRINE NEOPLASIA TYPE-2 LOCI TO A SMALL INTERVAL ON CHROMOSOME 10Q11.2 [J].
GARDNER, E ;
PAPI, L ;
EASTON, DF ;
CUMMINGS, T ;
JACKSON, CE ;
KAPLAN, M ;
LOVE, DR ;
MOLE, SE ;
MOORE, JK ;
MULLIGAN, LM ;
NORUM, RA ;
PONDER, MA ;
REICHLIN, S ;
STALL, G ;
TELENIUS, H ;
TELENIUSBERG, M ;
TUNNACLIFFE, A ;
PONDER, BAJ .
HUMAN MOLECULAR GENETICS, 1993, 2 (03) :241-246
[8]  
Hopwood P, 1998, PSYCHO-ONCOL, V7, P402, DOI 10.1002/(SICI)1099-1611(1998090)7:5<402::AID-PON317>3.0.CO
[9]  
2-X
[10]   ATTITUDES ABOUT GENETIC TESTING FOR BREAST-OVARIAN CANCER SUSCEPTIBILITY [J].
LERMAN, C ;
DALY, M ;
MASNY, A ;
BALSHEM, A .
JOURNAL OF CLINICAL ONCOLOGY, 1994, 12 (04) :843-850