The autism diagnostic experiences of French parents

被引：80

作者：

Chamak, Brigitte ^{[1
]}

Bonniau, Beatrice ^{[1
]}

Oudaya, Lila ^{[1
]}

Ehrenberg, Alain ^{[1
]}

机构：

[1] Univ Paris 05, CERMES Ctr Rech Med Sci Sante Sante Mentale & Soc, CESAMES, INSERM,U988,CNRS,UMR 8211,EHESS, F-75270 Paris 06, France

来源：

AUTISM | 2011年 / 15卷 / 01期

关键词：

autism; diagnosis; French diagnostic system; parents' perceptions; changes in the diagnostic process; SPECTRUM DISORDERS; DEVELOPMENTAL-DISABILITY; CHILDREN; DETERMINANTS; SATISFACTION; DISCLOSURE; RECOGNITION; STRESS; SAMPLE; AGE;

D O I：

10.1177/1362361309354756

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

This survey focused on French parents' views of the diagnostic process relating to their child with autism. Data were collected on the age at diagnosis, the time taken to obtain a diagnosis and the difficulties encountered. Questionnaires filled in by the parents (n = 248) and in-depth interviews (n = 43) were analyzed in order to obtain quantitative and qualitative results. The ages of the children ranged from 4 to 45. This approach enabled us to compare the practices of professionals now and in the past. The mean age of diagnosis was 10 +/- 8 years from 1960 to 1990, 5 +/- 3 years from 1990 to 2005 (3 +/- 1 from 2003 to 2005). The results showed that the mean delays between first consultation and diagnosis were reduced. Regarding the way the diagnosis was announced, 63% of the parents of children with autism and 93% of the parents of adults with autism were dissatisfied. We discuss the parents' reactions and the changes in the diagnostic process.

引用

页码：83 / 97

页数：15

共 33 条

[1] Towards a new functional assessment of autistic dysfunction in children with developmental disorders -: The Behaviour Function Inventory [J].