HIV-related stigma among people with HIV and their families: A qualitative analysis

被引:146
作者
Bogart, Laura M. [1 ]
Cowgill, Burton O. [2 ,3 ]
Kennedy, David [1 ]
Ryan, Gery [1 ]
Murphy, Debra A. [4 ]
Elijah, Jacinta [2 ]
Schuster, Mark A. [1 ,2 ,3 ]
机构
[1] RAND Corp, Santa Monica, CA 90407 USA
[2] Univ Calif Los Angeles, David Geffen Sch Med, Mattel Childrins Hosp, Dept Pediat, Los Angeles, CA 90095 USA
[3] Univ Calif Los Angeles, Sch Publ Hlth, Dept Hlth Serv, Santa Monica, CA USA
[4] Univ Calif Los Angeles, Dept Psychiat, Santa Monica, CA USA
关键词
HIV/AIDS; stigma; discrimination; family;
D O I
10.1007/s10461-007-9231-x
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
We examined the interconnectedness of stigma experiences in families living with HIV, from the perspective of multiple family members. Semi-structured interviews were conducted with 33 families (33 parents with HIV, 27 children under age 18, 19 adult children, and 15 caregivers). Parents were drawn from the HIV Cost and Services Utilization Study, a representative sample of people in care for HIV in US. All of the families recounted experiences with stigma, including 100% of mothers, 88% of fathers, 52% of children, 79% of adult children, and 60% of caregivers. About 97% of families described discrimination fears, 79% of families experienced actual discrimination, and 10% of uninfected family members experienced stigma from association with the parent with HIV. Interpersonal discrimination seemed to stem from fears of contagion. Findings indicate a need for interventions to reduce HIV stigma in the general public and to help families cope with stigma.
引用
收藏
页码:244 / 254
页数:11
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