Research ethics recommendations for whole-genome research: Consensus statement

被引：172

作者：

Caulfield, Timothy ^{[1
]}

McGuire, Amy L. ^{[1
]}

Cho, Mildred ^{[2
]}

Buchanan, Janet A. ^{[3
]}

Burgess, Michael M. ^{[4
]}

Danilczyk, Ursula ^{[5
]}

Diaz, Christina M. ^{[1
]}

Fryer-Edwards, Kelly ^{[6
]}

Green, Shane K. ^{[7
]}

Hodosh, Marc A. ^{[8
]}

Juengst, Eric T. ^{[9
]}

Kaye, Jane ^{[10
]}

Kedes, Laurence ^{[11
]}

Knoppers, Bartha Maria ^{[12
]}

Lemmens, Trudo ^{[13
]}

Meslin, Eric M. ^{[14
]}

Murphy, Juli ^{[15
]}

Nussbaum, Robert L. ^{[16
]}

Otlowski, Margaret ^{[17
]}

Pullman, Daryl ^{[18
]}

Ray, Peter N. ^{[19
]}

Sugarman, Jeremy ^{[20
]}

Timmons, Michael ^{[8
]}

机构：

[1] Baylor Coll Med, Ctr Med Eth & Hlth Policy, Houston, TX 77030 USA

[2] Stanford Univ, Stanford Ctr Biomed Eth, Stanford, CA 94305 USA

[3] Hosp Sick Children, Ctr Appl Genom, Toronto, ON M5G 1X8, Canada

[4] Univ British Columbia, Ctr Appl Eth, Vancouver, BC V5Z 1M9, Canada

[5] Canadian Inst Hlth Res, Inst Genet, Toronto, ON, Canada

[6] Univ Washington, Sch Med, Seattle, WA USA

[7] Ontario Genom Inst, Toronto, ON, Canada

[8] X Prize Fdn, Santa Monica, CA USA

[9] Case Western Reserve Univ, Dept Bioeth, Cleveland, OH 44106 USA

[10] Univ Oxford, Ethox Ctr, Oxford, England

[11] Univ So Calif, Keck Sch Med, Inst Med Genet, Los Angeles, CA 90033 USA

[12] Univ Montreal, Fac Law, Montreal, PQ, Canada

[13] Univ Toronto, Fac Law, Toronto, ON M5S 1A1, Canada

[14] Indiana Univ, Ctr Bioeth, Indianapolis, IN 46204 USA

[15] Univ Calif San Francisco, Genet & Publ Policy Ctr, Washington, DC USA

[16] Univ Calif San Francisco, Div Med Genet, San Francisco, CA 94143 USA

[17] Univ Tasmania, Fac Law, Hobart, Tas, Australia

[18] Mem Univ Newfoundland, St John, NF, Canada

[19] Univ Toronto, Dept Med Genet & Microbiol, Toronto, ON, Canada

[20] Johns Hopkins Berman Inst Bioeth, Baltimore, MD USA

来源：

PLOS BIOLOGY | 2008年 / 6卷 / 03期

关键词：

D O I：

10.1371/journal.pbio.0060073

中图分类号：

Q5 [生物化学]; Q7 [分子生物学];

学科分类号：

071010 ; 081704 ;

摘要：

[No abstract available]

引用

页码：430 / 435

页数：6

共 30 条

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[7] *BAYL COLL MED GEN, 2008, J WATS PERS GEN SEQ
[8] Beyond consent: ethical and social issues in genetic testing
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[J]. NATURE REVIEWS GENETICS, 2001, 2 (02) : 147 - 151
[9] Science and society - The social and ethical issues of post-genomic human biobanks
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[J]. NATURE REVIEWS GENETICS, 2004, 5 (11) : 866 - 873
[10] Caulfield Timothy., 2007, KINGS LJ, V18, P209

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