Genetic privacy: orthodoxy or oxymoron?

被引:25
作者
Sommerville, A [1 ]
English, V [1 ]
机构
[1] British Med Assoc, London, England
关键词
genetics; ethics; genetic privacy; confidentiality; duty to know;
D O I
10.1136/jme.25.2.144
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
In this paper me question whether the concept of "genetic privacy" is a contradiction in terms. And, if so, whether the implications of such a conclusions inevitubly impact on how society comes to perceive privacy! and responsibility generally Current law and ethical discourse place a hi,ph value on self-determination and the rights of individuals. In the medical sphere, the recognition of patient "rights" has resulted in health professionals being give clear duties of candour and frankness. Dilemmas arise, however; when patients decline to know relevant information or, knowing it, refuse to share it with others who may also need to know. This paper considers the notions of interconnectedness and responsibility, to others which are brought to the fore in the genetic sphere and which challenge the primacy afforded to personal autonomy. It also explores the extent to which an individual's perceived moral obligations can or should be enforced.
引用
收藏
页码:144 / 150
页数:7
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