The REDCap consortium: Building an international community of software platform partners

被引:10939
作者
Harris, Paul A. [1 ,2 ,3 ]
Taylor, Robert [3 ]
Minor, Brenda L. [3 ]
Elliott, Veida [3 ]
Fernandez, Michelle [3 ]
O'Neal, Lindsay [3 ]
McLeod, Laura [3 ]
Delacqua, Giovanni [3 ]
Delacqua, Francesco [3 ]
Kirby, Jacqueline [3 ]
Duda, Stephany N. [1 ,3 ]
机构
[1] Vanderbilt Univ, Med Ctr, Dept Biomed Informat, Nashville, TN 37235 USA
[2] Vanderbilt Univ, Dept Biomed Engn, Nashville, TN 37235 USA
[3] Vanderbilt Univ, Vanderbilt Inst Clin & Translat Res, Med Ctr, Nashville, TN USA
关键词
Medical informatics; Electronic data capture; Clinical research; Translational research; CLINICAL-RESEARCH INFORMATICS; TRANSLATIONAL RESEARCH; TECHNOLOGY; CHILDREN; SCIENCE; QUALITY; AWARDS; TRIAL;
D O I
10.1016/j.jbi.2019.103208
中图分类号
TP39 [计算机的应用];
学科分类号
080201 [机械制造及其自动化];
摘要
The Research Electronic Data Capture (REDCap) data management platform was developed in 2004 to address an institutional need at Vanderbilt University, then shared with a limited number of adopting sites beginning in 2006. Given bi-directional benefit in early sharing experiments, we created a broader consortium sharing and support model for any academic, non-profit, or government partner wishing to adopt the software. Our sharing framework and consortium-based support model have evolved over time along with the size of the consortium (currently more than 3200 REDCap partners across 128 countries). While the "REDCap Consortium" model represents only one example of how to build and disseminate a software platform, lessons learned from our approach may assist other research institutions seeking to build and disseminate innovative technologies.
引用
收藏
页数:10
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