Caregiver burden and patients' perception of being a burden in ALS

被引：192

作者：

Chiò, A

Gauthier, A

Calvo, A

Ghiglione, P

Mutani, R

机构：

[1] Univ Turin, Dept Neurosci, I-10126 Turin, Italy

[2] IRCCS, Ist Auxol Italiano, Piancavallo, Italy

来源：

NEUROLOGY | 2005年 / 64卷 / 10期

关键词：

D O I：

10.1212/01.WNL.0000162034.06268.37

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

The determinants of ALS caregiver burden and the feeling of the patients as being a burden were assessed using the Caregiver Burden Inventory and the Self-Perceived Burden Scale in 60 caregiver-patient couples. Caregiver burden was correlated to their level of depression and quality of life and, differently from other chronic disorders, increased with the worsening of patients' disability. ALS patients have a good objective perception of their impact on caregivers.

引用

收藏

页码：1780 / 1782

页数：3

相关论文

共 10 条

[1] Disparities in perceptions of distress and burden in ALS patients and family caregivers [J].

Adelman, EE ;

Albert, SM ;

Rabkin, JG ;

Del Bene, ML ;

Tider, T ;

O'Sullivan, I .

NEUROLOGY, 2004, 62 (10) :1766-1770

[2] A cross sectional study on determinants of quality of life in ALS [J].

Chiò, A ;

Gauthier, A ;

Montuschi, A ;

Calvo, A ;

Di Vito, N ;

Ghiglione, P ;

Mutani, R .

JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2004, 75 (11) :1597-1601

[3] THE MCGILL QUALITY-OF-LIFE QUESTIONNAIRE - A MEASURE OF QUALITY-OF-LIFE APPROPRIATE FOR PEOPLE WITH ADVANCED DISEASE - A PRELIMINARY-STUDY OF VALIDITY AND ACCEPTABILITY [J].

COHEN, SR ;

MOUNT, BM ;

STROBEL, MG ;

BUI, F .

PALLIATIVE MEDICINE, 1995, 9 (03) :207-219

[4] Measuring chronic patients' feelings of being a burden to their caregivers -: Development and preliminary validation of a scale [J].

Cousineau, N ;

McDowell, I ;

Hotz, S ;

Hébert, P .

MEDICAL CARE, 2003, 41 (01) :110-118

[5] Burden of care in amyotrophic lateral sclerosis [J].

Hecht, MJ ;

Graesel, E ;

Tigges, S ;

Hillemacher, T ;

Winterholler, M ;

Hilz, MJ ;

Heuss, D ;

Neundörfer, B .

PALLIATIVE MEDICINE, 2003, 17 (04) :327-333

[6] GENDER DIFFERENCES IN CAREGIVING - FACT OR ARTIFACT [J].

MILLER, B ;

CAFASSO, L .

GERONTOLOGIST, 1992, 32 (04) :498-507

[7] APPLICATION OF A MULTIDIMENSIONAL CAREGIVER BURDEN INVENTORY [J].

NOVAK, M ;

GUEST, C .

GERONTOLOGIST, 1989, 29 (06) :798-803

[8] Resilience and distress among amyotrophic lateral sclerosis patients and caregivers [J].

Rabkin, JG ;

Wagner, GJ ;

Del Bene, M .

PSYCHOSOMATIC MEDICINE, 2000, 62 (02) :271-279

[9] The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease [J].

Thommessen, B ;

Aarsland, D ;

Braekhus, A ;

Oksengaard, AR ;

Engedal, K ;

Laake, K .

INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 2002, 17 (01) :78-84

[10] A study comparing patients with amyotrophic lateral sclerosis and their caregivers on measures of quality of life, depression, and their attitudes toward treatment options [J].

Trail, M ;

Nelson, ND ;

Van, JN ;

Appel, SH ;

Lai, EC .

JOURNAL OF THE NEUROLOGICAL SCIENCES, 2003, 209 (1-2) :79-85