Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

被引：41

作者：

Clayton, Ellen Wright ^{[1
]}

Smith, Maureen ^{[2
]}

Fullerton, Stephanie M. ^{[3
]}

Burke, Wylie ^{[3
]}

McCarty, Catherine A. ^{[4
]}

Koenig, Barbara A. ^{[5
]}

McGuire, Amy L. ^{[6
]}

Beskow, Laura M. ^{[7
]}

Dressler, Lynn ^{[8
]}

Lemke, Amy A. ^{[2
]}

Ramos, Erin M. ^{[9
]}

Rodriguez, Laura Lyman ^{[9
]}

机构：

[1] Vanderbilt Univ, Ctr Biomed Eth & Soc, Nashville, TN 37203 USA

[2] Northwestern Univ, Feinberg Sch Med, NW Univ Clin & Translat Sci Inst, Ctr Genet Med, Chicago, IL 60611 USA

[3] Univ Washington, Dept Bioeth & Humanities, Seattle, WA 98195 USA

[4] Marshfield Clin Res Fdn, Ctr Human Genet, Marshfield, WI USA

[5] Mayo Clin, Coll Med, Rochester, MN USA

[6] Baylor Coll Med, Ctr Med Eth & Hlth Policy, Houston, TX 77030 USA

[7] Duke Univ, Ctr Genome Eth Law & Policy, Duke Inst Genome Sci & Policy, Durham, NC USA

[8] Univ N Carolina, UNC Eshelman Sch Pharm, Inst Pharmacogen & Individualized Therapy, Chapel Hill, NC USA

[9] NHGRI, Bethesda, MD 20892 USA

来源：

GENETICS IN MEDICINE | 2010年 / 12卷 / 10期

关键词：

INTERNATIONAL HAPMAP PROJECT; GENETIC RESEARCH; INFORMED-CONSENT; COMMUNITY ENGAGEMENT; PARTICIPANTS; RECOMMENDATIONS; CONSULTATION; POPULATIONS; PROTECTION; LESSONS;

D O I：

10.1097/GIM.0b013e3181efdbd0

中图分类号：

Q3 [遗传学];

学科分类号：

071007 ; 090102 ;

摘要：

引用

页码：616 / 620

页数：5

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