Self-help on-line: An outcome evaluation of breast cancer bulletin boards

被引:87
作者
Lieberman, MA [1 ]
Goldstein, BA [1 ]
机构
[1] Univ Calif San Francisco, San Francisco, CA 94118 USA
关键词
breast cancer; Internet; outcome; psychosocial factors; support groups;
D O I
10.1177/1359105305057319
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
Many breast cancer patients find help from on-line self-help groups, consisting of self-directed, asynchronous, bulletin boards. These have yet to be empirically evaluated. Upon joining a group and 6 months later, new members (N = 114) to breast cancer bulletin boards completed measures of depression (CES-D), growth (PTGI) and psychosocial wellbeing (FACT B). Improvement was statistically significant on all three measures. This serves as a first validation of Internet bulletin boards as a source of support and help for breast cancer patients. These boards are of particular interest because they are free, accessible and support comes from peers and not from professional facilitators.
引用
收藏
页码:855 / 862
页数:8
相关论文
共 24 条
[1]   Reliability and validity of the functional assessment of cancer therapy-breast quality-of-life instrument [J].
Brady, MJ ;
Cella, DF ;
Mo, F ;
Bonomi, AE ;
Tulsky, DS ;
Lloyd, SR ;
Deasy, S ;
Cobleigh, M ;
Shiomoto, G .
JOURNAL OF CLINICAL ONCOLOGY, 1997, 15 (03) :974-986
[2]   Communication of social support in computer-mediated groups for people with disabilities [J].
Braithwaite, DO ;
Waldron, VR ;
Finn, J .
HEALTH COMMUNICATION, 1999, 11 (02) :123-151
[3]   THE FUNCTIONAL ASSESSMENT OF CANCER-THERAPY SCALE - DEVELOPMENT AND VALIDATION OF THE GENERAL MEASURE [J].
CELLA, DF ;
TULSKY, DS ;
GRAY, G ;
SARAFIAN, B ;
LINN, E ;
BONOMI, A ;
SILBERMAN, M ;
YELLEN, SB ;
WINICOUR, P ;
BRANNON, J ;
ECKBERG, K ;
LLOYD, S ;
PURL, S ;
BLENDOWSKI, C ;
GOODMAN, M ;
BARNICLE, M ;
STEWART, I ;
MCHALE, M ;
BONOMI, P ;
KAPLAN, E ;
TAYLOR, S ;
THOMAS, CR ;
HARRIS, J .
JOURNAL OF CLINICAL ONCOLOGY, 1993, 11 (03) :570-579
[4]   Who talks?: The social psychology of illness support groups [J].
Davison, KP ;
Pennebaker, JW ;
Dickerson, SS .
AMERICAN PSYCHOLOGIST, 2000, 55 (02) :205-217
[5]  
Ganz Patricia A., 2000, Breast J, V6, P324, DOI 10.1046/j.1524-4741.2000.20042.x
[6]   Health-related quality-of-life measurement in randomized clinical trials in breast cancer - Taking stock [J].
Goodwin, PJ ;
Black, JT ;
Bordeleau, LJ ;
Ganz, PA .
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE, 2003, 95 (04) :263-281
[7]   Effect of computer support on younger women with breast cancer [J].
Gustafson, DH ;
Hawkins, R ;
Pingree, S ;
McTavish, F ;
Arora, NK ;
Mendenhall, J ;
Cella, DF ;
Serlin, RC ;
Apantaku, FM ;
Stewart, J ;
Salner, A .
JOURNAL OF GENERAL INTERNAL MEDICINE, 2001, 16 (07) :435-445
[8]   Online cancer support groups - A review of the research literature [J].
Klemm, P ;
Bunnell, D ;
Cullen, M ;
Soneji, R ;
Gibbons, P ;
Holecek, A .
CIN-COMPUTERS INFORMATICS NURSING, 2003, 21 (03) :136-142
[9]  
Lieberman M. A., 2002, INT J SELF HELP SELF, V1, P323, DOI DOI 10.2190/EGWJ-GBQD-KPDA-7UUD
[10]   Electronic support groups for breast carcinoma - A clinical trial of effectiveness [J].
Lieberman, MA ;
Golant, M ;
Giese-Davis, J ;
Winzlenberg, A ;
Benjamin, H ;
Humphreys, K ;
Kronenwetter, C ;
Russo, S ;
Spiegel, D .
CANCER, 2003, 97 (04) :920-925