How to develop web-based decision support interventions for patients: A process map

被引:96
作者
Elwyn, Glyn [1 ]
Kreuwel, Ilse [2 ]
Durand, Marie Anne
Sivell, Stephanie
Joseph-Williams, Natalie
Evans, Rhodri
Edwards, Adrian
机构
[1] Cardiff Univ, Dept Publ Hlth & Primary Care, Decis Lab, Clin Epidemiol Interdisciplinary Res Grp, Cardiff CF14 4YS, S Glam, Wales
[2] Radboud Univ Nijmegen, IQ Sci Inst Qual Healthcare, NL-6525 EZ Nijmegen, Netherlands
关键词
Decision support interventions; Decision aids; Development of complex interventions; AIDS;
D O I
10.1016/j.pec.2010.04.034
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Objective: Significant advances have been made in the development of decision support interventions, also called decision aids, for patients facing difficult or uncertain decisions. However, challenges related to the definition, the theoretical underpinnings, the relative contribution of different components and how to migrate these tools to the Internet, remain unresolved. We propose a systematic process map for others to consider as they develop web-based, perhaps multimedia, decision support interventions and to examine the future challenges faced by developers. Methods: Based on our experiences of developing and evaluating web-based decision support interventions, we outline a process map to illustrate the general principles of content specification followed by creative design and tailoring to the target audience. Results: Content specification is fundamental and it should go beyond the traditional emphasis on scientific evidence in order to ensure patients' perspectives on the proposed options. The creative design phase aims to develop a medium to achieve three fundamental tasks: present information; achieve accurate affective forecasting; provide a basis for preference construction. This phase should be an open to experimentation and, where empirical work may be difficult or not yet available, guided by consultation with users, using an iterative method of trial and adaptation. Conclusion: There is little empirical research on how best to achieve these tasks. The guiding principle needs to be one of customising the delivery, based on close consultation with the target users and an iterative development process until the intervention is deemed accessible and useful. Practice implications: The process map provides a basis for further developments and outlines areas where remaining challenges need further investigation. (C) 2010 Elsevier Ireland Ltd. All rights reserved.
引用
收藏
页码:260 / 265
页数:6
相关论文
共 19 条
[1]  
[Anonymous], J MED INTER IN PRESS
[2]  
[Anonymous], PATIENT ED COUNS
[3]  
[Anonymous], THEORY BASE IN PRESS
[4]  
[Anonymous], PATIENT ED COUNS
[5]  
[Anonymous], HLTH EXPECT IN PRESS
[6]  
[Anonymous], PATIENT ED IN PRESS
[7]   Developing a quality criteria framework for patient decision aids: online international Delphi consensus process [J].
Elwyn, Glyn ;
O'Connor, Annette ;
Stacey, Dawn ;
Volk, Robert ;
Edwards, Adrian ;
Coulter, Angela ;
Thomson, Richard ;
Barrat, Alexandra ;
Butow, Phyllis ;
Barry, Michael ;
Mulley, Albert G. ;
Sepucha, Karen ;
Bernstein, Steven ;
Clarke, Aileen ;
Entwistle, Vikki ;
Feldman-Stewart, Deb ;
Holmes-Rovner, Margaret ;
Llewellyn-Thomas, Hilary ;
Moumjid, Nora ;
Ruland, Cornelia ;
Sykes, Alan ;
Whelan, Tim .
BMJ-BRITISH MEDICAL JOURNAL, 2006, 333 (7565) :417-419
[8]   Dual equipoise shared decision making: definitions for decision and behaviour support interventions [J].
Elwyn, Glyn ;
Frosch, Dominick ;
Rollnick, Stephen .
IMPLEMENTATION SCIENCE, 2009, 4
[9]   Assessing the Quality of Decision Support Technologies Using the International Patient Decision Aid Standards instrument (IPDASi) [J].
Elwyn, Glyn ;
O'Connor, Annette M. ;
Bennett, Carol ;
Newcombe, Robert G. ;
Politi, Mary ;
Durand, Marie-Anne ;
Drake, Elizabeth ;
Joseph-Williams, Natalie ;
Khangura, Sara ;
Saarimaki, Anton ;
Sivell, Stephanie ;
Stiel, Mareike ;
Bernstein, Steven J. ;
Col, Nananda ;
Coulter, Angela ;
Eden, Karen ;
Haerter, Martin ;
Rovner, Margaret Holmes ;
Moumjid, Nora ;
Stacey, Dawn ;
Thomson, Richard ;
Whelan, Tim ;
van der Weijden, Trudy ;
Edwards, Adrian .
PLOS ONE, 2009, 4 (03)
[10]   Toward a model for field-testing patient decision-support technologies: A qualitative field-testing study [J].
Evans, Rhodri ;
Elwyn, Glyn ;
Edwards, Adrian ;
Watson, Eila ;
Austoker, Joan ;
Grol, Richard .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2007, 9 (03) :e21