Against all odds: Positive life experiences of people with advanced amyotrophic lateral sclerosis

被引:65
作者
Young, JM
McNicoll, P
机构
[1] GF Strong Rehab Ctr, Vancouver, BC V5Z 2G9, Canada
[2] Univ British Columbia, Sch Social Work, Vancouver, BC V5Z 1M9, Canada
关键词
adaptation; amyotrophic lateral sclerosis; coping; illness; positive life experience;
D O I
10.1093/hsw/23.1.35
中图分类号
C916 [社会工作、社会管理、社会规划];
学科分类号
1204 ;
摘要
The study discussed in this article describes the nature of positive life experiences of 13 people coping exceptionally well while living with advanced amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease, and the resulting significant physical disability. The most powerful themes to emerge were the use of cognitive reappraisal, reframing, and intellectual stimulation as coping mechanisms; the development of wisdom; and the vital importance of interpersonal relationships. On the basis of our findings, we make suggestions for ways professionals can assist people with ALS and their significant others.
引用
收藏
页码:35 / 43
页数:9
相关论文
共 26 条
[1]   Constructing benefits from adversity: Adaptational significance and dispositional underpinnings [J].
Affleck, G ;
Tennen, H .
JOURNAL OF PERSONALITY, 1996, 64 (04) :899-922
[2]  
ARMON C, 1992, HDB AMYOTROPHIC LATE, P93
[3]  
BIEGEL DE, 1994, HEALTH SOC WORK, V19, P206
[4]   WHAT THINGS ARE IMPORTANT IN PEOPLES LIVES - A SURVEY OF THE PUBLICS JUDGMENTS TO INFORM SCALES OF HEALTH-RELATED QUALITY-OF-LIFE [J].
BOWLING, A .
SOCIAL SCIENCE & MEDICINE, 1995, 41 (10) :1447-1462
[5]  
Brugha T., 1995, Social Support and Psychiatric Disorder: research findings and guidelines for clinical practice, P1, DOI 10.1017/CBO9780511526749.002
[6]  
Cohen S R, 1992, J Palliat Care, V8, P40
[7]   Social networks, social support and coping with serious illness: The family connection [J].
Ell, K .
SOCIAL SCIENCE & MEDICINE, 1996, 42 (02) :173-183
[8]  
FOLKMAN S, 1996, SOCIAL CONTEXT COPIN, P239
[9]   A LIFE-ENHANCING CONDITION - THE HONORABLE FILER,SAM,N. [J].
GOLDBLATT, D .
SEMINARS IN NEUROLOGY, 1993, 13 (04) :375-379
[10]   AMYOTROPHIC LATERAL SCLEROSIS SEVERITY SCALE [J].
HILLEL, AD ;
MILLER, RM ;
YORKSTON, K ;
MCDONALD, E ;
NORRIS, FH ;
KONIKOW, N .
NEUROEPIDEMIOLOGY, 1989, 8 (03) :142-150