Developing the theoretical basis for service user/survivor-led research and equal involvement in research

被引:89
作者
Beresford, P [1 ]
机构
[1] Brunel Univ, Ctr Citizen Participat, Isleworth TW7 5DU, Middx, England
来源
EPIDEMIOLOGIA E PSICHIATRIA SOCIALE | 2005年 / 14卷 / 01期
关键词
service user involvement; user control; research; theory;
D O I
10.1017/S1121189X0000186X
中图分类号
R749 [精神病学];
学科分类号
100205 [精神病与精神卫生学];
摘要
Aims and methods - This article, written from a service user/survivor perspective, explores a hypothesis which seeks to offer a more systematic basis for the full and equal involvement of mental health service users/survivors in both the research process and research structures more generally. The hypothesis challenges traditional em basis on positivist assumptions about the priority of values of 'distance', 'neutrality' and 'objectivity' (which it argues discriminate against service users and their experiential knowledge). It explores instead the idea that 'the shorter the distance between direct experience and its interpretation, then the less likely resulting knowledge is to be inaccurate, unreliable and distorted. Results and conclusions - The proposal discusses ways in which such (objective and subjective) distance may be reduced, to improve the quality of research, to enable more equal involvement of service users and their direct experience and to make it possible for non-service user researchers to work alongside service users on more equal terms.
引用
收藏
页码:4 / 9
页数:6
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