Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF)

被引:236
作者
Cieza, A
Stucki, G
机构
[1] Univ Munich, Dept Phys Med & Rehabil, D-81377 Munich, Germany
[2] Univ Munich, IMBK, WHO FIC Collaborating Ctr DIMDI, IFC Res Branch, Munich, Germany
关键词
content validity; generic instruments; health-related quality of life (HRQOL); health status measures; ICF;
D O I
10.1007/s11136-004-4773-0
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
The increasing recognition of the patient perspective and, more specifically, functioning and health, has led to an impressive effort in research to develop concepts and instruments to measure them. Health-Related Quality of Life (HRQOL) and the International Classification of Functioning Disability and Health (ICF) represent two different perspectives from which to look at functioning and health. Therefore, it is expected that both will often be used concurrently in clinical practice, research and health reporting. The objective of our study was to examine the relationship between six HRQOL instruments (the SF-36, the NHP, the QL-I, the WHOQOL-BREF, the WHODASII and the EQ-5D) and the ICF. All six HRQOL instruments were linked to the ICF separately by two trained health professionals according to ten linking rules developed specifically for this purpose. The degree of agreement between health professionals was calculated by means of the kappa statistic. Bootstrapped confidence intervals were calculated. In the 148 items of the 6 instruments a total of 226 concepts were identified and linked to the ICF. The estimated kappa coefficients range between 0.82 and 0.98. The concepts contained in the items of the HRQOL instruments were linked to 91 different ICF categories, 17 categories of the component body functions, 60 categories of the component activities and participation, and 14 categories of the component environmental factors. Twelve concepts could not be linked to the ICF at all. In the component body functions, only emotional functions are covered by all examined instruments. In the component activities and participation, all instruments cover aspects of work, but the half of them scarcely cover aspects of mobility. Only four of the six instruments address environmental factors. The ICF proved highly useful for the comparison of HRQOL instruments. The comparison of selected HRQOL instruments may provide clinicians and researchers with new insights when selecting health-status measures for clinical studies.
引用
收藏
页码:1225 / 1237
页数:13
相关论文
共 28 条
[1]  
[Anonymous], 1980, International classification of impairments, disabilities and handicaps
[2]   Social relations as determinant of onset of disability in aging [J].
Avlund, K ;
Lund, R ;
Holstein, BE ;
Due, P .
ARCHIVES OF GERONTOLOGY AND GERIATRICS, 2004, 38 (01) :85-99
[3]   EuroQol: The current state of play [J].
Brooks, R .
HEALTH POLICY, 1996, 37 (01) :53-72
[4]   Linking health-status measurements to the international classification of functioning, disability and health [J].
Cieza, A ;
Brockow, T ;
Ewert, T ;
Amman, E ;
Kollerits, B ;
Chatterji, S ;
Üstün, TB ;
Stucki, G .
JOURNAL OF REHABILITATION MEDICINE, 2002, 34 (05) :205-210
[5]   A COEFFICIENT OF AGREEMENT FOR NOMINAL SCALES [J].
COHEN, J .
EDUCATIONAL AND PSYCHOLOGICAL MEASUREMENT, 1960, 20 (01) :37-46
[6]   Modeling valuations for EuroQol health states [J].
Dolan, P .
MEDICAL CARE, 1997, 35 (11) :1095-1108
[7]   Measuring health outcomes in stroke survivors [J].
Doyle, PJ .
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2002, 83 (12) :S39-S43
[8]   HANDICAP ONE-YEAR AFTER A STROKE - VALIDITY OF A NEW SCALE [J].
HARWOOD, RH ;
GOMPERTZ, P ;
EBRAHIM, S .
JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 1994, 57 (07) :825-829
[9]  
HUNT SM, 1985, J ROY COLL GEN PRACT, V35, P185
[10]   Life satisfaction related to work re-entry after brain injury:: a longitudinal study [J].
Johansson, U ;
Bernspång, B .
BRAIN INJURY, 2003, 17 (11) :991-1002