Successful techniques for retention of study participants in an inner-city population

被引:78
作者
Senturia, YD
Mortimer, KM
Baker, D
Gergen, P
Mitchell, H
Joseph, C
Wedner, HJ
机构
[1] Childrens Mem Hosp, Chicago, IL 60614 USA
[2] Harvard Univ, Sch Publ Hlth, Boston, MA 02115 USA
[3] Univ Calif Irvine, Ctr Environm & Occupat Hlth, Irvine, CA 92717 USA
[4] NIAID, NIH, Bethesda, MD 20892 USA
[5] New England Res Inst, Watertown, MA 02172 USA
[6] Henry Ford Hosp, Detroit, MI 48202 USA
[7] Washington Univ, Sch Med, St Louis, MO USA
来源
CONTROLLED CLINICAL TRIALS | 1998年 / 19卷 / 06期
关键词
pediatric asthma; retention; cohort study; minorities;
D O I
10.1016/S0197-2456(98)00032-4
中图分类号
R-3 [医学研究方法]; R3 [基础医学];
学科分类号
1001 ;
摘要
The purpose of this work was to describe methods of retaining participants in studies of inner-city populations, including the timing and intensity of contacts; and to describe the characteristics of participants who did not complete all follow-up interviews and/or return all peak flow diaries in the National Cooperative Inner-City Asthma Study. A cohort study design was used involving hospital emergency rooms and community clinics in seven major urban areas. Participants included 1337 4- to 9-year-old asthmatic children and their caretakers. Nearly 89% of participants completed 3-, 6-, and 9-month follow-up interviews. The 15% of participants who completed a baseline interview on the weekends were significantly more likely to complete follow-up interviews on a weekend. The percent of follow-up interviews conducted in person increased over time from 5% to 8%. The percent of participants with complete follow-up increased as the number of contact names increased (86% with zero contacts, 91% with two contracts; p = 0.03, test for trend). Participants who required at least four phone calls to complete the 3- and 6-month assessment were significantly mole likely to be black, have higher participant stress, and have a smoker in the household (p < 0.05). Multiple logistic regression suggests that higher social support and lower parental stress were both predictors of completed interviews. Within our study sample of inner-city minority participants with asthmatic children, only a small proportion of participants missed any follow-up interviews. Increased caretaker stress, decreased social support, and inability to provide several alternate contacts were all predictive of retention problems, Having a flexible staff, computer tracking, and face-to-face recruitment appear essential to achieving nearly complete follow-up within a population historically difficult to follow. Controlled Clin Trials 1998;19:544-554 (C) Elsevier Science Inc. 1998.
引用
收藏
页码:544 / 554
页数:11
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