Measurement properties of adult quality-of-life measurement instruments for eczema: a systematic review

被引:54
作者
Heinl, D. [1 ]
Prinsen, C. A. C. [2 ]
Deckert, S. [3 ]
Chalmers, J. R. [4 ]
Drucker, A. M. [5 ]
Ofenloch, R. [6 ]
Humphreys, R. [7 ]
Sach, T. [8 ]
Chamlin, S. L. [9 ]
Schmitt, J. [3 ]
Apfelbacher, C. [1 ,10 ]
机构
[1] Univ Regensburg, Dept Epidemiol & Prevent Med, Med Sociol, Dr Gessler Str 17, D-93051 Regensburg, Germany
[2] Vrije Univ Amsterdam Med Ctr, EMGO Inst Hlth & Care Res, Dept Epidemiol & Biostat, Amsterdam, Netherlands
[3] Tech Univ Dresden, Med Fak Carl Gustav Carus, Ctr Evidence Based Healthcare, Dresden, Germany
[4] Univ Nottingham, Ctr Evidence Based Dermatol, Nottingham NG7 2RD, England
[5] Univ Hlth Network, Div Dermatol, Toronto, ON, Canada
[6] Univ Heidelberg Hosp, Dept Clin Social Med, Heidelberg, Germany
[7] Budleigh Salterton, Budleigh Salterton, Devon, England
[8] Univ E Anglia, Norwich Med Sch, Norwich NR4 7TJ, Norfolk, England
[9] Northwestern Univ, Feinberg Sch Med, Ann & Robert H Lurie Childrens Hosp Chicago, Chicago, IL USA
[10] Brighton & Sussex Med Sch, Div Publ Hlth & Primary Care, Falmer, E Sussex, England
基金
美国国家卫生研究院;
关键词
core outcome set; eczema; Harmonising Outcome Measures for Eczema initiative; measurement properties; quality of life; METHODOLOGICAL QUALITY; ATOPIC-DERMATITIS; OUTCOME MEASURES; SKIN DISEASES; GERMAN INSTRUMENT; COSMIN CHECKLIST; HEALTH; DERMATOLOGY; PSORIASIS; INDEX;
D O I
10.1111/all.12806
中图分类号
R392 [医学免疫学];
学科分类号
100108 [医学免疫学];
摘要
BackgroundThe Harmonising Outcome Measures for Eczema (HOME) initiative has identified quality of life (QoL) as a core outcome domain to be evaluated in every eczema trial. It is unclear which of the existing QoL instruments is most appropriate for this domain. Thus, the aim of this review was to systematically assess the measurement properties of existing measurement instruments developed and/or validated for the measurement of QoL in adult eczema. MethodsWe conducted a systematic literature search in PubMed and Embase identifying studies on measurement properties of adult eczema QoL instruments. For all eligible studies, we assessed the adequacy of the measurement properties and the methodological quality with the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist. A best evidence synthesis summarizing findings from different studies was the basis to assign four degrees of recommendation (A-D). ResultsA total of 15 articles reporting on 17 instruments were included. No instrument fulfilled the criteria for category A. Six instruments were placed in category B, meaning that they have the potential to be recommended depending on the results of further validation studies. Three instruments had poor adequacy in at least one required adequacy criterion and were therefore put in category C. The remaining eight instruments were minimally validated and were thus placed in category D. ConclusionsCurrently, no QoL instrument can be recommended for use in adult eczema. The Quality of Life Index for Atopic Dermatitis (QoLIAD) and the Dermatology Life Quality Index (DLQI) are recommended for further validation research.
引用
收藏
页码:358 / 370
页数:13
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