An International Consensus Definition of the Wish to Hasten Death and Its Related Factors

被引:85
作者
Balaguer, Albert [1 ]
Monforte-Royo, Cristina [2 ]
Porta-Sales, Josep [1 ,3 ]
Alonso-Babarro, Alberto [4 ]
Altisent, Rogelio [5 ]
Aradilla-Herrero, Amor [6 ]
Bellido-Perez, Mercedes [2 ]
Breitbart, William [7 ]
Centeno, Carlos [8 ,9 ]
Angel Cuervo, Miguel [10 ]
Deliens, Luc [11 ,12 ]
Frerich, Gerrit [13 ]
Gastmans, Chris [14 ]
Lichtenfeld, Stephanie [15 ]
Limonero, Joaqun T. [16 ]
Maier, Markus A. [15 ]
Johan Materstvedt, Lars [17 ]
Nabal, Maria [18 ]
Rodin, Gary [19 ,20 ]
Rosenfeld, Barry [21 ]
Schroepfer, Tracy [22 ]
Tomas-Sabado, Joaquin [6 ]
Trelis, Jordi [3 ]
Villavicencio-Chavez, Christian [1 ,3 ]
Voltz, Raymond
机构
[1] Univ Int Catalunya, Sch Med & Hlth Sci, Barcelona, Spain
[2] Univ Int Catalunya, Sch Med & Hlth Sci, Dept Nursing, Barcelona, Spain
[3] Bellvitge Biomed Res Inst IDIBELL, Inst Catala Oncol, Palliat Care Serv, Barcelona, Spain
[4] Hosp Univ La Paz, Unidad Cuidados Paliat, Madrid, Spain
[5] Univ Zaragoza, Inst Hlth Res Aragon, Catedra Profesionalismo & Et Clin, Zaragoza, Spain
[6] Autonomous Univ Barcelona, Escola Univ Infermeria Gimbernat, Barcelona, Spain
[7] Mem Sloan Kettering Canc Ctr, New York, NY 10021 USA
[8] Univ Navarra, Univ Navarra Clin, Inst Culture & Soc, ATLANTES Res Program, Navarra, Spain
[9] Univ Navarra, Univ Navarra Clin, Palliat Med Dept, Navarra, Spain
[10] Complejo Hosp Infanta Cristina, Badajoz, Spain
[11] Univ Ghent, End Of Life Care Res Grp, Brussels, Belgium
[12] Vrije Univ Brussel, Brussels, Belgium
[13] Univ Hosp Cologne, Dept Palliat Med, Cologne, Germany
[14] Katholieke Univ Leuven, Leuven, Belgium
[15] Univ Munich, Munich, Germany
[16] Univ Autonoma Barcelona, Fac Psychol, Stress & Res Grp, E-08193 Barcelona, Spain
[17] Norwegian Univ Sci & Technol NTNU, Fac Humanities, Dept Philosophy & Religious Studies, Trondheim, Norway
[18] Hosp Arnau Vilanova, Inst Catala Salut, IRB, Palliat Care Support Team, Lleida, Spain
[19] Univ Toronto, Dept Psychiat, Princess Margaret Canc Ctr, Dept Support Care, Toronto, ON M5S 1A1, Canada
[20] Univ Toronto, GIPPEC, Toronto, ON M5S 1A1, Canada
[21] Fordham Univ, Dept Psychol, Bronx, NY 10458 USA
[22] Univ Wisconsin, Sch Social Work, Madison, WI 53706 USA
关键词
ILL CANCER-PATIENTS; TERMINALLY-ILL; ASSISTED SUICIDE; PALLIATIVE CARE; DELPHI TECHNIQUE; OLDER-PEOPLE; DESIRE; DIE; EUTHANASIA; DEPRESSION;
D O I
10.1371/journal.pone.0146184
中图分类号
O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];
学科分类号
070301 [无机化学]; 070403 [天体物理学]; 070507 [自然资源与国土空间规划学]; 090105 [作物生产系统与生态工程];
摘要
Background The desire for hastened death or wish to hasten death (WTHD) that is experienced by some patients with advanced illness is a complex phenomenon for which no widely accepted definition exists. This lack of a common conceptualization hinders understanding and cooperation between clinicians and researchers. The aim of this study was to develop an internationally agreed definition of the WTHD. Methods Following an exhaustive literature review, a modified nominal group process and an international, modified Delphi process were carried out. The nominal group served to produce a preliminary definition that was then subjected to a Delphi process in which 24 experts from 19 institutions from Europe, Canada and the USA participated. Delphi responses and comments were analysed using a pre-established strategy. Findings All 24 experts completed the three rounds of the Delphi process, and all the proposed statements achieved at least 79% agreement. Key concepts in the final definition include the WTHD as a reaction to suffering, the fact that such a wish is not always expressed spontaneously, and the need to distinguish the WTHD from the acceptance of impending death or from a wish to die naturally, although preferably soon. The proposed definition also makes reference to possible factors related to the WTHD. Conclusions This international consensus definition of the WTHD should make it easier for clinicians and researchers to share their knowledge. This would foster an improved understanding of the phenomenon and help in developing strategies for early therapeutic intervention.
引用
收藏
页数:14
相关论文
共 52 条
[1]
Wish to die in end-stage ALS [J].
Albert, SM ;
Rabkin, JG ;
Del Bene, ML ;
Tider, T ;
O'Sullivan, I ;
Rowland, LP ;
Mitsumoto, H .
NEUROLOGY, 2005, 65 (01) :68-74
[2]
Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer [J].
Breitbart, W ;
Rosenfeld, B ;
Pessin, H ;
Kaim, M ;
Funesti-Esch, J ;
Galietta, M ;
Nelson, CJ ;
Brescia, R .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2000, 284 (22) :2907-2911
[3]
BROWN JH, 1986, AM J PSYCHIAT, V143, P208
[4]
Relieving existential suffering through palliative sedation: discussion of an uneasy practice [J].
Bruce, Anne ;
Boston, Patricia .
JOURNAL OF ADVANCED NURSING, 2011, 67 (12) :2732-2740
[5]
THE NATURE OF SUFFERING AND THE GOALS OF MEDICINE [J].
CASSEL, EJ .
NEW ENGLAND JOURNAL OF MEDICINE, 1982, 306 (11) :639-645
[6]
Depression, hopelessness, and suicidal ideation in the terminally ill [J].
Chochinov, HM ;
Wilson, KG ;
Enns, M ;
Lander, S .
PSYCHOSOMATICS, 1998, 39 (04) :366-370
[7]
Understanding the will to live in patients nearing death [J].
Chochinov, HM ;
Hack, T ;
Hassard, T ;
Kristjanson, LT ;
Mcclement, S ;
Harlos, M .
PSYCHOSOMATICS, 2005, 46 (01) :7-10
[8]
CHOCHINOV HM, 1995, AM J PSYCHIAT, V152, P1185
[9]
Expressed desire for hastened death in seven patients living with advanced cancer: A phenomenologic inquiry [J].
Coyle, N ;
Sculco, L .
ONCOLOGY NURSING FORUM, 2004, 31 (04) :699-706
[10]
Global Research Priorities to Better Understand the Burden of Iatrogenic Harm in Primary Care: An International Delphi Exercise [J].
Cresswell, Kathrin M. ;
Panesar, Sukhmeet S. ;
Salvilla, Sarah A. ;
Carson-Stevens, Andrew ;
Larizgoitia, Itziar ;
Donaldson, Liam J. ;
Bates, David ;
Sheikh, Aziz .
PLOS MEDICINE, 2013, 10 (11)