Treating rheumatoid arthritis to target: the patient version of the international recommendations

被引:73
作者
de Wit, M. P. T. [1 ]
Smolen, J. S. [2 ,3 ]
Gossec, L. [4 ]
van der Heijde, D. M. F. M. [5 ]
机构
[1] Vrije Univ Amsterdam Med Ctr, Dept Med Humanities, NL-1081 BT Amsterdam, Netherlands
[2] Med Univ Vienna, Dept Internal Med 3, Div Rheumatol, Vienna, Austria
[3] Hietzing Hosp, Dept Med 2, Vienna, Austria
[4] Paris Descartes Univ, Cochin Hosp, Rheumatol Dept B, Paris, France
[5] Leiden Univ, Med Ctr, Dept Rheumatol, Leiden, Netherlands
关键词
DISEASE-ACTIVITY INDEX; DECISION-MAKING; INFORMATION; RISK; INVOLVEMENT; DEFINITION; ADHERENCE; REMISSION; CRITERIA; BELIEFS;
D O I
10.1136/ard.2010.146662
中图分类号
R5 [内科学];
学科分类号
100201 [内科学];
摘要
To transcribe the treat-to-target (T2T) recommendations into a version that can be easily understood by patients. A core group of physicians and patients involved in the elaboration of the T2T recommendations produced a draft version of the T2T recommendations in lay language. This version was discussed, changed and reworded during a 1-day meeting with nine patients with rheumatoid arthritis (RA) from nine different European countries. Finally, the level of agreement with the translation and with the content of the recommendations was assessed by the patient participants. The project resulted in a patient version of the T2T recommendations. The level of agreement with the translation and the content was high. The group discussion revealed a number of potential barriers for the implementation of the recommendations in clinical practice, such as inequalities in arthritis healthcare provision across Europe. An accurate version of the T2T recommendations that can be easily understood by patients is available and can improve the shared decision process in the management of RA.
引用
收藏
页码:891 / 895
页数:5
相关论文
共 26 条
[1]
The definition and measurement of disease modification in inflammatory rheumatic diseases [J].
Aletaha, D ;
Smolen, JS .
RHEUMATIC DISEASE CLINICS OF NORTH AMERICA, 2006, 32 (01) :9-+
[2]
The Simplified Disease Activity Index and Clinical Disease Activity Index to Monitor Patients in Standard Clinical Care [J].
Aletaha, Daniel ;
Smolen, Josef S. .
RHEUMATIC DISEASE CLINICS OF NORTH AMERICA, 2009, 35 (04) :759-+
[3]
Validation of the International Classification of Functioning, Disability and Health (ICF) Core Set for rheumatoid arthritis from the patient perspective using focus groups [J].
Coenen, Michaela ;
Cieza, Alarcos ;
Stamm, Tanja A. ;
Amann, Edda ;
Kollerits, Barbara ;
Stucki, Gerold .
ARTHRITIS RESEARCH & THERAPY, 2006, 8 (04)
[4]
EULAR standardised operating procedures for the elaboration, evaluation, dissemination, and implementation of recommendations endorsed by the EULAR standing committees [J].
Dougados, M ;
Betteridge, N ;
Burmester, GR ;
Euller-Ziegler, L ;
Guillemin, F ;
Hirvonen, J ;
Lloyd, J ;
Ozen, S ;
Da Silva, JAP ;
Emery, P ;
Kalden, JR ;
Kvien, T ;
Matucci-Cerinic, M ;
Smolen, J .
ANNALS OF THE RHEUMATIC DISEASES, 2004, 63 (09) :1172-1176
[5]
Felson DT, 2011, ANN RHEUM DIS, V70, P404, DOI [10.1136/ard.2011.149765, 10.1002/art.30129]
[6]
Fraenkel L, 2003, J RHEUMATOL, V30, P443
[7]
Unwillingness of rheumatoid arthritis patients to risk adverse effects [J].
Fraenkel, L ;
Bogardus, S ;
Concato, J ;
Felson, D .
RHEUMATOLOGY, 2002, 41 (03) :253-261
[8]
Hill J, 2001, ANN RHEUM DIS, V60, P869
[9]
Ho M, 1998, BRIT J RHEUMATOL, V37, P459
[10]
EULAR evidence-based recommendations on the management of systemic glucocorticoid therapy in rheumatic diseases [J].
Hoes, J. N. ;
Jacobs, J. W. G. ;
Boers, M. ;
Boumpas, D. ;
Buttgereit, F. ;
Caeyers, N. ;
Choy, E. H. ;
Cutolo, M. ;
Da Silva, J. A. P. ;
Esselens, G. ;
Guillevin, L. ;
Hafstrom, I. ;
Kirwan, J. R. ;
Rovensky, J. ;
Russell, A. ;
Saag, K. G. ;
Svensson, B. ;
Westhovens, R. ;
Zeidler, H. ;
Bijlsma, J. W. J. .
ANNALS OF THE RHEUMATIC DISEASES, 2007, 66 (12) :1560-1567