Building a Registry of Research Volunteers Among Older Urban African Americans: Recruitment Processes and Outcomes From a Community-Based Partnership

被引:55
作者
Chadiha, Letha A. [1 ]
Washington, Olivia G. M. [2 ,3 ]
Lichtenberg, Peter A. [2 ]
Green, Carmen R. [4 ,5 ,6 ,7 ]
Daniels, Karen L. [2 ]
Jackson, James S. [8 ]
机构
[1] Univ Michigan, Sch Social Work, Ann Arbor, MI 48109 USA
[2] Wayne State Univ, Inst Gerontol, Detroit, MI 48202 USA
[3] Wayne State Univ, Coll Nursing, Div Family Community & Mental Hlth Nursing, Detroit, MI 48202 USA
[4] Univ Michigan, Sch Med, Dept Anesthesiol, Ann Arbor, MI 48109 USA
[5] Univ Michigan, Sch Med, Dept Obstet, Ann Arbor, MI 48109 USA
[6] Univ Michigan, Sch Med, Dept Gynecol, Ann Arbor, MI 48109 USA
[7] Univ Michigan, Sch Publ Hlth, Dept Hlth Management & Policy, Ann Arbor, MI 48109 USA
[8] Univ Michigan, Dept Psychol, Inst Social Res, Ann Arbor, MI 48109 USA
关键词
Process evaluation; Logic model; Minority; Participatory research; Underrepresented groups; RESEARCH PARTICIPANTS; CANCER REGISTRIES; CLINICAL-RESEARCH; RETENTION; MINORITIES; ENROLLMENT; TRIALS; ELDERS; WOMEN;
D O I
10.1093/geront/gnr034
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
Purpose of the study: An emerging strategy for increasing public participation in health research is volunteer registries. Using a community-based participatory research framework, we describe recruitment processes and outcomes in building a research volunteer registry of older urban African Americans. The specific research question examined retrospectively was: How does a community outreach partnership between older residents and academic researchers of the Healthier Black Elders Center facilitate recruitment of older urban African Americans for a research volunteer registry? Design and Methods: We adapted program evaluation methods, specifically, the logic model, for clarifying how community outreach health education activities supported development of a research volunteer registry of older urban African Americans. Results: Paralleling the 7 years in which an annual health reception was held, enrollees in a research volunteer registry increased from 102 to 1,273 enrollees. Implications: Targeted outreach to underrepresented groups to build a registry of volunteers for health research may be a promising strategy for addressing recruitment disparities in African Americans' research participation.
引用
收藏
页码:S106 / S115
页数:10
相关论文
共 32 条
[1]  
[Anonymous], 2000, Healthy People 2010: Understanding and Improving Health
[2]  
[Anonymous], EVALUATION PRACTICE
[3]  
[Anonymous], J MENTAL HLTH AGING
[4]  
AREAN PA, 2003, SCI INCLUSION RECRUI, P17
[5]   Women, older persons, and ethnic minorities: factors associated with their inclusion in randomised trials of statins 1990 to 2001 [J].
Bartlett, C ;
Davey, P ;
Dieppe, P ;
Doyal, L ;
Ebrahim, S ;
Egger, M .
HEART, 2003, 89 (03) :327-328
[6]   Research recruitment through US Central Cancer Registries: Balancing privacy and scientific issues [J].
Beskow, Laura M. ;
Sandler, Robert S. ;
Weinberger, Morris .
AMERICAN JOURNAL OF PUBLIC HEALTH, 2006, 96 (11) :1920-1926
[7]   Increasing minority participant enrollment into a cancer family registry: The cancer genetics network [J].
Bowen, Deborah J. ;
Vu, Thuy ;
Kasten-Sportes, Carol .
COMMUNITY GENETICS, 2008, 11 (04) :191-192
[8]  
BROWN DR, 2003, SCI INCLUSION RECRUI, P35
[9]   Effective Recruitment and Retention Strategies for Older Members of Rural Minorities [J].
Burns, Dorothy ;
Soward, April C. M. ;
Skelly, Anne H. ;
Leeman, Jennifer ;
Carlson, John .
DIABETES EDUCATOR, 2008, 34 (06) :1045-1052
[10]  
CHAPLESKI EE, 2002, FACING FUTURE UNPUB