Impact of Lennox-Gastaut Syndrome (LGS) on health-related quality of life (HRQL) of patients and caregivers: Literature review

被引：48

作者：

Gallop, Katy ^{[1
]}

Wild, Diane ^{[1
]}

Nixon, Annabel ^{[1
]}

Verdian, Lara

Cramer, Joyce A. ^{[2
]}

机构：

[1] Oxford Outcomes Ltd, Oxford OX2 0JJ, England

[2] Yale Univ, Sch Med, Orange, CT USA

来源：

SEIZURE-EUROPEAN JOURNAL OF EPILEPSY | 2009年 / 18卷 / 08期

关键词：

Lennox-Gastaut Syndrome (LGS); HRQL; Quality of life; Caregiver; INTELLECTUAL DISABILITY; PARENTAL STRESS; EPILEPSY; CHILDREN; EXPERIENCES; CHILDHOOD; DIAGNOSIS; FAMILY; SLEEP; EPIDEMIOLOGY;

D O I：

10.1016/j.seizure.2009.06.005

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

The aim of this study was to conduct a review of the literature to evaluate the impact of LGS on the HRQL of children with LGS and their caregivers. The literature search revealed that there is limited published research on the impact of LGS on the HRQL of the child or caregiver. LGS has a major physical impact on a child, with a high frequency of seizures, and a high rate of seizure-related injuries. It interferes with all aspects of the child's intellectual and social development. The patient, and also his/her entire family are affected. Caring for a child with LGS is described as a 'burden', with increased anxiety about injury from seizures as well as the Strain associated with providing continuous care. Overall, there is a lack of research on LGS, specifically the extent of the impact of LGS on the HRQL of the child and caregiver is under-explored. (C) 2009 British Epilepsy Association. Published by Elsevier Ltd. All Fights reserved

引用

页码：554 / 558

页数：5

共 44 条

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[2]

[Anonymous], 1993, Health status and health policy: Quality of life in health care evaluation and resource allocation

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