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Development of a questionnaire to evaluate the information needs of cancer patients: the EORTC questionnaire

被引：31
作者：
Arraras, JI
Wright, S
Greimel, E
Holzner, B
Kuljanic-Vlasic, K
Velikova, G
Eisemann, M
Visser, A
机构：
[1] Hosp Navarre, Dept Oncol, Pamplona 31008, Spain
[2] Leicester Gen Hosp, Dept Psychol Med, Leicester LE5 4PW, Leics, England
[3] Graz Univ, Dept Obstet & Gynaecol, Graz, Austria
[4] Univ Clin Innsbruck, Dept Psychiat, Innsbruck, Austria
[5] Clin Hosp Ctr, Dept Obstet & Gynaecol, Rijeka, Croatia
[6] St James Univ Hosp, ICRF Canc Med Res Unit, Leeds LS9 7TF, W Yorkshire, England
[7] Univ Tromso, Dept Psychol, Tromso, Norway
[8] Helen Dowling Inst Biopsychosocial Med, Maastricht, Netherlands
来源：
PATIENT EDUCATION AND COUNSELING | 2004年 / 54卷 / 02期
关键词：
information; cancer; quality of life; questionnaire;
D O I：
10.1016/S0738-3991(03)00240-4
中图分类号：
R1 [预防医学、卫生学];
学科分类号：
1004 ; 120402 ;
摘要：
Information disclosure is one of the key areas of support that patients may receive. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has a group working on the development of a questionnaire that evaluates information received by cancer patients at different stages of their disease-EORTC QLQ-INFO30. This instrument is being developed by professionals from most European regions. The questionnaire aims to evaluate the information received by cancer patients on different areas of the disease, diagnosis, treatment and care. Besides, the instrument also assesses qualitative aspects of the information they have received. The present paper presents the first two phases of the module development process that include literature review, interviews with patients and professionals, and formulation of the items. All these steps have been carried out in different countries and have been approved by the EORTC QLG. (C) 2003 Elsevier Ireland Ltd. All rights reserved.
引用
收藏
页码：235 / 241
页数：7
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