Ethical review of research into rare genetic disorders

被引：26

作者：

Parker, M ^{[1
]}

Ashcroft, R

Wilkie, AOM

Kent, A

机构：

[1] Univ Oxford, Dept Publ Hlth, Oxford OX3 7LF, England

[2] John Radcliffe Hosp, Weatherall Inst Mol Med, Oxford OX3 9DS, England

[3] Univ London Imperial Coll Sci Technol & Med, Med Eth Unit, London W6 8RP, England

[4] Genet Interest Grp, London N1 3QP, England

来源：

BRITISH MEDICAL JOURNAL | 2004年 / 329卷 / 7460期

关键词：

D O I：

10.1136/bmj.329.7460.288

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Although some work on rare diseases is clearly clinical investigation and some clearly research, much activity falls uneasily between the two. Where should we draw the line and how can we ensure research gets appropriate ethical review?

引用

页码：288 / 289

页数：2