Cancer genetics clinics: Target population and consultees' expectations

被引:37
作者
JulianReynier, C
Eisinger, F
Chabal, F
Aurran, Y
Nogues, C
Vennin, P
Bignon, YJ
MachelardRoumagnac, M
MaugardLouboutin, C
Serin, D
Versini, S
Mercuri, M
Sobol, H
机构
[1] INST J PAOLI I CALMETTES, F-13009 MARSEILLE, FRANCE
[2] CTR RENE HUGUENIN, ST CLOUD, FRANCE
[3] CTR OSCAR LAMBRET, F-59020 LILLE, FRANCE
[4] CTR JEAN PERRIN, CLERMONT FERRAND, FRANCE
[5] CTR CLAUDIUS REGAUD, TOULOUSE, FRANCE
[6] CTR RENE GAUDUCHEAU, F-44035 NANTES, FRANCE
[7] CLIN ST CATHERINE, AVIGNON, FRANCE
[8] HOP MISERICORDE, AJACCIO, FRANCE
[9] MUTUELLES PROVENCE, GARDANNE, FRANCE
关键词
cancer; clinical genetics; counselling; consultees; social epidemiology;
D O I
10.1016/0959-8049(95)00601-X
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
The aim of this study was to determine in healthy consultees attending cancer genetics clinics their risk status, their pathways leading to the clinics, their expectations and perception of cancer risk. In 1994, the consultees at six French centres completed a questionnaire before their first oncogenetic consultation. The oncogeneticists subsequently filled in a standardised form giving their risk assessment. Among the 206 healthy consultees, 91.3% were women, 92.2% had at least one cancer-affected first-degree relative and 73% had a ''cancer family risk'' as assessed by the oncogeneticist. Sixty-nine per cent of the consultees were referred to the clinics by a physician, 10.4% by their family and 18.8% on their own initiative: 83.5% of the sample perceived their family risk of cancer as being high and this belief was confirmed in 74.3% of the cases studied by the oncogeneticist. The families of self-referred consultees were less often at risk than those of consultees referred by a physician or by their family (P = 0.012). The majority (78%) expected to be informed about cancer prevention and screening, and this expectation depended on the consultee's level of education (P = 0.001). This study shows that medical pathways are more effective than the media as a means of reaching the members of the general population who are genuinely at risk, and shows that fuller information about prevention needs to be provided at cancer genetic consultations.
引用
收藏
页码:398 / 403
页数:6
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