Experience of fatigue in adolescents living with cancer

被引:45
作者
Ream, Emma
Gibson, Faith
Edwards, Jacqueline
Seption, Beth
Mulhall, Anne
Richardson, Alison
机构
[1] Kings Coll London, Florence Nightingale Sch Nursing & Midwifery, London SE1 9NN, England
[2] Great Ormond St Hosp Sick Children, Res Inst Child Hlth, London WC1N 3JH, England
[3] Kings Coll London, Ctr Nursing & Allied Hlth Profess Res, Great Ormond St Hosp Children, London SE1 9NN, England
[4] John Radcliffe Hosp, NHS Trust, Paediat Unit, Oxford OX3 9DU, England
[5] Univ Southampton, Sch Nursing & Midwifery, Southampton, Hants, England
[6] Coach House, Ashmanhaugh, Norfolk, England
关键词
adolescents; cancer treatment; fatigue; quality of life; supportive care;
D O I
10.1097/00002820-200607000-00011
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
This article reports on a small-scale exploratory study conducted with-cohorts of adolescents during and after treatment of cancer to explore experiences of fatigue and perceptions of its impact on functioning. A concurrent mixed method design was used to enable detailed understanding of the phenomenon of fatigue in these groups of individuals through convergence of quantitative and qualitative data. Participants completed an investigator-designed Fatigue and Quality. of Life Diary for a period of 1 week. Second, they took. part in a semistructured interview to explore issues around fatigue and functioning in more detail. Eight adolescents undergoing treatment participated in-the study, along with 6 in early remission (1-2 years off treatment) and 8 receiving follow-up (5 or more years off treatment). Data. gained from these sources suggested that fatique can be a considerable problem for adolescents during and after treatment, and that it may not necessarily abate quickly. Some individuals perceived that their quality of life remained compromised many years after treatment, and it seemed that fatigue might play an important part in this. These preliminary findings suggest that research into management of fatigue in this adolescent group is warranted, a long with research and development to determine how best to provide supportive care once treatment finishes.
引用
收藏
页码:317 / 326
页数:10
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