Taking our obligations to research participants seriously: Disclosing individual results of genetic research

被引:17
作者
Manolio, Teri A. [1 ]
机构
[1] NHGRI, NIH, Bethesda, MD USA
关键词
D O I
10.1080/15265160600935953
中图分类号
B82 [伦理学(道德学)];
学科分类号
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页码:32 / 34
页数:4
相关论文
共 9 条
[1]   Informed consent for population-based research involving genetics [J].
Beskow, LM ;
Burke, W ;
Merz, JF ;
Barr, PA ;
Terry, S ;
Penchaszadeh, VB ;
Gostin, LO ;
Gwinn, M ;
Khoury, MJ .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2001, 286 (18) :2315-2321
[2]   Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group [J].
Bookman, EB ;
Langehorne, AA ;
Eckfeldt, JH ;
Glass, KC ;
Jarvik, GP ;
Klag, M ;
Koski, G ;
Motulsky, A ;
Wilfond, B ;
Manolio, TA ;
Fabsitz, RR ;
Luepker, RV .
AMERICAN JOURNAL OF MEDICAL GENETICS PART A, 2006, 140A (10) :1033-1040
[3]  
Institute of Medicine (US) Committee on Quality of Health Care in America, 2001, CROSSING QUALITY CHA
[4]   A network of investigator networks in human genome epidemiology [J].
Ioannidis, JPA ;
Bernstein, J ;
Boffetta, P ;
Danesh, J ;
Dolan, S ;
Hartge, P ;
Hunter, D ;
Inskip, P ;
Jarvelin, MR ;
Little, J ;
Maraganore, DM ;
Bishop, JAN ;
O'Brien, TR ;
Petersen, G ;
Riboli, E ;
Seminara, D ;
Taioli, E ;
Uitterlinden, AG ;
Vineis, P ;
Winn, DM ;
Salanti, G ;
Higgins, JPT ;
Khoury, MJ .
AMERICAN JOURNAL OF EPIDEMIOLOGY, 2005, 162 (04) :302-304
[5]  
MacKay Charles R, 1984, IRB, V6, P1, DOI 10.2307/3564589
[6]  
National Bioethics Advisory Commission, 1999, RES INV HUM BIOL MAT
[7]  
Ravitsky V, 2006, AM J BIOETHICS, V6, P8, DOI 10.1080/15265160600934772
[8]  
Smith R, 2000, POLICY POLIT, V28, P3
[9]   The NIH roadmap [J].
Zerhouni, E .
SCIENCE, 2003, 302 (5642) :63-+