Do cancer-specific websites meet patient's information needs?

被引:45
作者
Warren, Emily [1 ]
Footman, Katharine [1 ]
Tinelli, Michela [2 ]
McKee, Martin [1 ]
Knai, Cecile [1 ]
机构
[1] London Sch Hyg & Trop Med, Fac Publ Hlth & Policy, London WC1H 9SH, England
[2] Univ London London Sch Econ & Polit Sci, LSE Hlth & Social Care, London WC2A 2AE, England
基金
欧盟第七框架计划;
关键词
Patient education; Patient information needs; Online health information; PROSTATE-CANCER; BREAST-CANCER; DECISION-MAKING; SATISFACTION; COMMUNICATION; RADIOTHERAPY; PREFERENCES; INTERNET; WOMEN; CARE;
D O I
10.1016/j.pec.2013.12.013
中图分类号
R1 [预防医学、卫生学];
学科分类号
100235 [预防医学];
摘要
Objective: To evaluate commonly used cancer websites' information provision, we developed and applied an Information Comprehensiveness Tool to breast and prostate cancer websites. Methods: We first collated questions from a systematic literature review on patient information needs. We then classified the questions in terms of spectrum of care, theme, and nature of question. "Breast cancer" and "prostate cancer" were typed into Google, and websites listed on the first page of results were selected. Two researchers, blind to each others' scores, assessed the same websites using the coding system. Each question was scored on a 3-point scale as not (0%), partially (50%) and fully (100%) answered by two researchers. Average scores were calculated across all questions. Inter-rater reliability was assessed. Results: We identified 79 general, 5 breast, and 5 prostate cancer questions. Inter-rater reliability was good, with an intraclass coefficient of 0.756 (95% CIs 0.729-0.781). 17 questions were not answered thoroughly by any website. Questions about "future planning", "monitoring", and "decision-making" were discussed least. Biomedical questions scored highest. Conclusions: More comprehensive information needs to be provided on breast and prostate cancer websites. Practice implications: This ICT can improve cancer information online and enable patients to engage more actively regarding their information needs. (C) 2014 Elsevier Ireland Ltd. All rights reserved.
引用
收藏
页码:126 / 136
页数:11
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