The Short Health Scale:: A valid measure of subjective health in ulcerative colitis

被引:113
作者
Hjortswang, Henrik
Jarnerot, Gunnar
Curman, Bengt
Sandberg-Gertzen, Hanna
Tysk, Curt
Blomberg, Bjorn
Almer, Sven
Strom, Magnus
机构
[1] Linkoping Univ Hosp, Dept Mol & Clin Med, Div Gastroenterol & Hepatol, SE-58185 Linkoping, Sweden
[2] Oregon Univ Hosp, Dept Med, Div Gastroenterol, Orebro, Sweden
关键词
IBD; inflammatory bowel disease; health; health-related quality of life; quality of life; well-being;
D O I
10.1080/00365520600610618
中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
Objective. Assessment of health-related quality of life (HRQOL) is important in both clinical practice and clinical trials, and several multi-item questionnaires are currently in use. We have devised and evaluated a simplified four-item questionnaire, the Short Health Scale (SHS), representing each of four health dimensions: (a) symptom burden, (b) social function, (c) disease-related worry and (d) general well-being. Material and methods. Three hundred patients with ulcerative colitis completed the SHS and three other HRQOL questionnaires (IBDQ, RFIPC and PGWB). Half of the patients repeated the questionnaires after 6 months - or earlier if disease activity changed. Test - retest reliability was derived from measurements of the SHS questions, 2 weeks apart, on 18 patients in remission. Results. Patients in relapse scored higher on each of the four SHS questions than patients in remission (p < 0.001). Each of the four SHS scores were associated with results of their corresponding health dimension obtained with the other three questionnaires (r(s)=0.57-0.78, p < 0.001) (validity). The results of the SHS proved stable on repeated measurement with a 2-week interval in patients in remission (r(s) = 0.71-0.91, p < 0.01) (test-retest reliability). Patients with a change in disease activity had a significant change in their SHS scores (p < 0.05) (responsiveness). Conclusions. The SHS is a valid, reliable and responsive measure of subjective health in patients with ulcerative colitis. It is simple to administer, quickly completed and the results do not need further calculations. The SHS can be used in clinical trials and in clinical practice to identify the patient's main problems affecting health.
引用
收藏
页码:1196 / 1203
页数:8
相关论文
共 14 条
[1]
THE RATING FORM OF IBD PATIENT CONCERNS - A NEW MEASURE OF HEALTH-STATUS [J].
DROSSMAN, DA ;
LESERMAN, J ;
LI, ZM ;
MITCHELL, CM ;
ZAGAMI, EA ;
PATRICK, DL .
PSYCHOSOMATIC MEDICINE, 1991, 53 (06) :701-712
[2]
Dupuy H.J., 1984, ASSESSMENT QUALITY L, P170
[3]
A NEW MEASURE OF HEALTH-STATUS FOR CLINICAL-TRIALS IN INFLAMMATORY BOWEL-DISEASE [J].
GUYATT, G ;
MITCHELL, A ;
IRVINE, EJ ;
SINGER, J ;
WILLIAMS, N ;
GOODACRE, R ;
TOMPKINS, C .
GASTROENTEROLOGY, 1989, 96 (03) :804-810
[4]
MEASURING HEALTH-RELATED QUALITY-OF-LIFE [J].
GUYATT, GH ;
FEENY, DH ;
PATRICK, DL .
ANNALS OF INTERNAL MEDICINE, 1993, 118 (08) :622-629
[5]
PSYCHOMETRIC CONSIDERATIONS IN EVALUATING HEALTH-RELATED QUALITY-OF-LIFE MEASURES [J].
HAYS, RD ;
ANDERSON, R ;
REVICKI, D .
QUALITY OF LIFE RESEARCH, 1993, 2 (06) :441-449
[6]
SOCIAL PROGNOSIS IN PATIENTS WITH ULCERATIVE-COLITIS [J].
HENDRIKSEN, C ;
BINDER, V .
BRITISH MEDICAL JOURNAL, 1980, 281 (6240) :581-583
[7]
Health-related quality of life in Swedish patients with ulcerative colitis [J].
Hjortswang, H ;
Ström, M ;
Almer, S .
AMERICAN JOURNAL OF GASTROENTEROLOGY, 1998, 93 (11) :2203-2211
[8]
The network:: a strategy to describe the relationship between quality of life and disease activity.: The case of inflammatory bowel disease [J].
Hjortswang, H ;
Almer, S ;
Ström, M .
EUROPEAN JOURNAL OF GASTROENTEROLOGY & HEPATOLOGY, 1999, 11 (10) :1099-1104
[9]
Hjortswang H, 2001, SCAND J GASTROENTERO, V36, P77
[10]
Evaluation of the RFIPC, a disease-specific health-related quality of life questionnaire, in Swedish patients with ulcerative colitis [J].
Hjortswang, H ;
Ström, M ;
Almeida, RT ;
Almer, S .
SCANDINAVIAN JOURNAL OF GASTROENTEROLOGY, 1997, 32 (12) :1235-1240