Concerns of patients with inflammatory bowel disease - A review of emerging themes

被引:174
作者
Casati, J [1 ]
Toner, BB [1 ]
de Rooy, EC [1 ]
Drossman, DA [1 ]
Maunder, RG [1 ]
机构
[1] Univ Toronto, Clarke Div, Ctr Addict & Mental Hlth, Womens Mental Hlth Res Programme, Toronto, ON, Canada
关键词
inflammatory bowel disease; ulcerative colitis; Crohn's disease; psychosocial factors; worries and concerns;
D O I
10.1023/A:1005492806777
中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
Idiopathic, chronic inflammatory bowel disease (IBD) refers to two diseases-ulcerative colitis (UC) and Crohn's disease (CD). Despite an abundant literature discussing the pathophysiology and treatment of these diseases, little if any empirical studies have focused on patients' subjective experiences with their diseases. The purpose of this paper was to identify and discuss the concerns of individuals with IBD and to suggest that the integration of concerns in clinical management is necessary for a comprehensive understanding of these chronic and debilitating diseases. In addition, case studies were included to highlight the concerns of people with IBD. Our review of the literature identified eight categories of concerns for individuals with IBD. They included loss of energy, loss of control, body image, isolation and fear, not reaching full potential, feeling dirty, and lack of information from the medical community. In conclusion, we argue that the efficacy of treatment for IBD would be greatly improved if psychosocial issues were to be integrated into treatment protocols.
引用
收藏
页码:26 / 31
页数:6
相关论文
共 23 条
[1]  
BROWN C, 1983, CONSUMING PASSIONS
[2]  
COLCHER SD, 1984, DISS ABSTR INT, V44, pB3200
[3]  
DEROOY EC, UNPUB CONCERNS OUTPA
[4]  
DION KK, 1995, SOCIAL PSYCHOL RES A, P115
[5]   HEALTH-RELATED QUALITY OF LIFE IN INFLAMMATORY BOWEL-DISEASE - FUNCTIONAL STATUS AND PATIENT WORRIES AND CONCERNS [J].
DROSSMAN, DA ;
PATRICK, DL ;
MITCHELL, CM ;
ZAGAMI, EA ;
APPELBAUM, MI .
DIGESTIVE DISEASES AND SCIENCES, 1989, 34 (09) :1379-1386
[6]   THE RATING FORM OF IBD PATIENT CONCERNS - A NEW MEASURE OF HEALTH-STATUS [J].
DROSSMAN, DA ;
LESERMAN, J ;
LI, ZM ;
MITCHELL, CM ;
ZAGAMI, EA ;
PATRICK, DL .
PSYCHOSOMATIC MEDICINE, 1991, 53 (06) :701-712
[7]  
DRUSS RG, 1969, ARCH GEN PSYCHIAT, V20, P419
[8]   MENTAL-HEALTH AND PSYCHOLOGICAL FUNCTIONING IN CHILDREN AND ADOLESCENTS WITH INFLAMMATORY BOWEL-DISEASE - A COMPARISON WITH CHILDREN HAVING OTHER CHRONIC ILLNESSES AND WITH HEALTHY-CHILDREN [J].
ENGSTROM, I .
JOURNAL OF CHILD PSYCHOLOGY AND PSYCHIATRY AND ALLIED DISCIPLINES, 1992, 33 (03) :563-582
[9]   SOCIAL TOLL OF CROHNS-DISEASE [J].
GAZZARD, BG ;
PRICE, HL ;
LIBBY, GW ;
DAWSON, AM .
BRITISH MEDICAL JOURNAL, 1978, 2 (6145) :1117-1119
[10]  
GLOECKNER M, 1982, DIS COLON RECTUM, V2, P575