机构:
Univ Turku, Dept Publ Hlth, Turku 20014, Finland
Univ Turku, Dept Child Neurol, Turku 20014, FinlandUniv Turku, Dept Publ Hlth, Turku 20014, Finland
Sillanpaa, Matti
[1
,2
]
Cross, J. Helen
论文数: 0引用数: 0
h-index: 0
机构:
Natl Ctr Young People Epilepsy, London, England
UCL, Great Ormond St Hosp Children NHS, Inst Child Hlth, London, EnglandUniv Turku, Dept Publ Hlth, Turku 20014, Finland
Cross, J. Helen
[3
,4
]
机构:
[1] Univ Turku, Dept Publ Hlth, Turku 20014, Finland
[2] Univ Turku, Dept Child Neurol, Turku 20014, Finland
[3] Natl Ctr Young People Epilepsy, London, England
[4] UCL, Great Ormond St Hosp Children NHS, Inst Child Hlth, London, England
Behavior;
Childhood;
Classification of disabilities;
Epilepsy;
Learning;
Psychosocial impact;
Social integration;
Stigma;
QUALITY-OF-LIFE;
PEDIATRIC EPILEPSY;
CHILDREN;
DISABILITY;
SEIZURE;
SCALE;
ONSET;
D O I:
10.1016/j.yebeh.2009.03.007
中图分类号:
B84 [心理学];
C [社会科学总论];
Q98 [人类学];
学科分类号:
03 ;
0303 ;
030303 ;
04 ;
0402 ;
摘要:
In addition to its medical impact with respect to loss of control, drug effects, and comorbidity, epilepsy has a marked impact on a child's life. Population-based studies show that 70-76% of children with epilepsy have some type of disability or handicap affecting their daily life and choices for the future. Comorbidity and, specifically, learning disability (sometimes referred to as mental retardation) modify the life of a child and the family. To improve these children's position in society, they should have the same opportunities and be allowed to make choices on the basis of their abilities, not their diagnosis of epilepsy. Supporting the development of acceptance, self-reliance, self-respect, and self-empowerment of children with epilepsy is crucial to their achieving a place in the community equal to their abilities. This is a challenging task for their families, relatives, school teachers, employers, and legislators. (C) 2009 Elsevier Inc. All rights reserved.