Broad Consent Is Consent for Governance

被引：41

作者：

Boers, Sarah N. ^{[1
]}

van Delden, Johannes J. M. ^{[1
]}

Bredenoord, Annelien L. ^{[1
]}

机构：

[1] Univ Med Ctr Utrecht, NL-3508 GA Utrecht, Netherlands

来源：

AMERICAN JOURNAL OF BIOETHICS | 2015年 / 15卷 / 09期

关键词：

D O I：

10.1080/15265161.2015.1062165

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

010105 [伦理学];

摘要：

引用

页码：53 / 55

页数：3

共 7 条

[1]

Obtaining Consent for Future Research with Induced Pluripotent Cells: Opportunities and Challenges [J].

Aalto-Setaelae, Katriina ;

Conklin, Bruce R. ;

Lo, Bernard .

PLOS BIOLOGY, 2009, 7 (02) :204-208

[2]

Postmortem disclosure of genetic information to family members: active or passive? [J].

Boers, Sarah N. ;

van Delden, Johannes J. M. ;

Knoers, Nine V. ;

Bredenoord, Annelien L. .

TRENDS IN MOLECULAR MEDICINE, 2015, 21 (03) :148-153

[3]

Caulfield T., 2009, Medical Law International, V10, P85, DOI DOI 10.1177/096853320901000201

[4]

Broad Consent for Research With Biological Samples: Workshop Conclusions [J].

Grady, Christine ;

Eckstein, Lisa ;

Berkman, Ben ;

Brock, Dan ;

Cook-Deegan, Robert ;

Fullerton, Stephanie M. ;

Greely, Hank ;

Hansson, Mats G. ;

Hull, Sara ;

Kim, Scott ;

Lo, Bernie ;

Pentz, Rebecca ;

Rodriguez, Laura ;

Weil, Carol ;

Wilfond, Benjamin S. ;

Wendler, David .

AMERICAN JOURNAL OF BIOETHICS, 2015, 15 (09) :34-42

[5]

The Tension Between Data Sharing and the Protection of Privacy in Genomics Research [J].

Kaye, Jane .

ANNUAL REVIEW OF GENOMICS AND HUMAN GENETICS, VOL 13, 2012, 13 :415-431

[6]

From consent to institutions: Designing adaptive governance for genomic biobanks [J].

O'Doherty, Kieran C. ;

Burgess, Michael M. ;

Edwards, Kelly ;

Gallagher, Richard P. ;

Hawkins, Alice K. ;

Kaye, Jane ;

McCaffrey, Veronica ;

Winickoff, David E. .

SOCIAL SCIENCE & MEDICINE, 2011, 73 (03) :367-374

[7]

Research Practice and Participant Preferences: The Growing Gulf [J].

Trinidad, S. B. ;

Fullerton, S. M. ;

Ludman, E. J. ;

Jarvik, G. P. ;

Larson, E. B. ;

Burke, W. .

SCIENCE, 2011, 331 (6015) :287-288

← 1 →